Thursday, August 14, 2008

Wrapping up, Moving on: new blog

Last night I finally did it: I read the whole blog again, from end to end. I had not been able to do this until now. The combination of a printout prepared by my brother, and a sleepless night in Quebec City gave me the push it required. I laughed and cried as I re-lived the whole thing again, and when I finished I knew it was time to end, to move on.

I had strange dreams when I finally slept: I witnessed an autopsy of Claudia and the doctor gave me a special strip of tissue. "It is great for your skin", she said, and she put it in a plastic bag for me. I then saw again the fantastic projection "Moulin a Images" on the old port of Quebec, celebrating 400 years of history, and then did another strange travel through 30 years of writing: correspondence, publications, the blog... Dreams have that special way of navigating you through symbols.

I started a new blog, not about Claudia or life without her, but about me. I now have a room of my own. This is where the story will now continue, with Claudia in my heart.


Check it out.

Sunday, August 10, 2008

Cottage on the Lake

After a week with the family at a cottage on Lake McFee, we're replenished, re-energized, and rejuvenated. The kids had the greatest of times, rediscovering the cousins, aunts & uncles, and grandparents. Missing were Lysanne and Alejo: she almost gave birth to a premature baby "pretzel", but things ended up stabilizing and she is back home after a week in he hospital.

The beauty of Canadian lakes, with loons and beavers and ducks and deer and water snakes to behold; unending peace and quiet, swimming and canoeing and kayaking all day long, watching the stars late into the night, napping on the hammock as needed... pure bliss.

Next stop is Quebec City, celebrating its 400 years of history and hosting the International Federation of Library Associations (IFLA) annual conference, where I will be presenting some of my ongoing research with teams around the world. The world never ceases to amaze me.

Sunday, July 27, 2008

Summer Run Fun

This morning we participated in Swedish Summer Run to benefit ovarian cancer research, in memory of Claudia six months after her death. A group of about 25 ended up coming, some running 5 or 10k, and most of us walking the 5k on a cold Sunday morning. Good conversation, good memories of Claudia, good friends. At one point I was overtaken by sadness and I cried for a few blocks, but most of it was joy of shared friendship and high spirit to move on.

Thank you all for participating with us, and thank you for helping raise over $1300 to support the Marsha Rivkin Ovarian Cancer Research Center.

Friday, July 18, 2008

Soccer Rules!

This weekend again is all about soccer. Mateo's team is at its first select soccer tournament in Tumwater, right next to Olympia, WA. It is a new team, though some of the boys have played together before, and it is a well experienced coach, so it has been quite interesting to see them come together... first game was an amazing 5-2 victory, with beautiful playing that took us all by surprise. More photos here.

It seems much of our life turns around soccer nowadays. Practices several times a week, for one team or the other, and tournaments every couple of weeks... I keep on telling myself that soccer has been good for the boys to deal with Claudia's sickness, and the grief following her death. I tell myself I'd rather take them to soccer than to the mall, or worse, I'd rather they play soccer than video games all the time. Nonetheless, it is sometimes a bit much, all this soccer. A bit much for me alone. I'd love to share it...

Like so many other things in life I'd rather share. We've been talking about dating, and about what kind of person I could date. Dating by committee, someone told me this week... well, I do have some baggage, I am not alone. I reassure the boys that nobody will ever take their mom's place; but also, that I will likely not stay single (and available to drive them to soccer) forever. We've had fun putting together the list of features they would like to see, and then we've laughed some more when I ask them if they know someone who meets all those criteria. For them, she must love soccer, of course. And must be nice to them, especially when I'm not around... and a dozen other characteristics. I have some additional criteria of my own, which has made me think about where I'm at just now. Not quite interested in exploring online dating, and very happy enjoying the friendship of people around me. Even reestablishing contact with long-lost friends, thanks to facebook and other networks. Technology is all about communication.

We're really looking forward to Camila's arrival next week, to the Summer Run next Sunday, and to a trip to Ottawa and Quebec City early in August. It is a busy summer. It seems it is all about soccer, but there is plenty more happening as well.

Monday, July 07, 2008

Swedish Summer Run: 6 months anniversary


This July 27 we will celebrate Claudia's life by participating in Swedish Summer Run 2008, to benefit the Marsha Rivkin Center for Ovarian Cancer Research. It will be six months since she died, after battling ovarian cancer for over two years, and this all seems like far, far away.

Far away when she was diagnosed, almost three years ago after an abnormal annual exam and no symptoms. Far away when she plowed through chemo, surgery, more chemo, some more chemo, and more surgery, all the while maintaining hope, enthusiasm and passion to live. Far away when she finally rested in peace, at home, filled with love, last January. Tomorrow is her birthday. She would have been 45.

She participated in Swedish Summer Run in 2006 and 2007. This year I still kept the same team name, Around Claudia, and I invite you all to join us and pay one last homage in her memory (not sure if we will do Summer Run next year). Celebrate by walking or running with us. If you can't join us (or even if you can), donate some funds to help ovarian cancer research and support.

July 27 seems like far away, but in fact it is just around the corner. Come join the team Around Claudia, this year without her.

If you would like to support the cause with a gift Click here to make a donation.

If you would like to join our team on July 27th Click here to register.

If you would like to view our team page Click here to visit my Web page

Sunday, July 06, 2008

Camping

We went camping for 4th of July to Mt Rainier. I was way too optimistic, hoping for wildflower blooms on the mountainside.... it was covered with snow, most trails closed, it was rainy and cold. But we had fun nonetheless, and I remembered how much I love cooking on the fire. We made arepas for the whole group one morning, and empanadas another night; both have been family favorites during camping trips.

We missed Claudia.

We hiked through an old growth forest; some trees have been there for over a thousand years. They've seen their share of things, and they are still holding on. A lesson in patience. Mt Rainier is a young volcano; only about 100 million years. A lesson in geological patience.

We missed Claudia, nonetheless.

Wednesday, July 02, 2008

July is here

We made it to July... or rather, July caught up with us. Now it is all downhill for the second half of the year, a mad race to Dec 31. Or is it?

Weeds in the yard are winning their battle. I only pull them from around the few tomato plants I have near the house, the only ones I water, too. This year I have not had the energy to do much more in the yard, despite how much I love that work. Nonetheless, plums are fully loaded and growing, promising their bounty for the fall "healing plum jelly" that I've been making the last couple of years: jellies I've shared with those bringing us meals, giving Claudia rides, helping out in every lovely way imaginable.

Last week we talked with the boys about how now it is our turn to look out for people we might be able to help and share a meal with, after having been on the receiving end for so long. And the opportunity did not wait: Jeanne had her sons in town, her husband was dying, and they wanted a bonfire at our place. We planned it for Sunday, and he died that morning. We had the bonfire anyway. I enjoyed the feeling of preparing the Colombian soup Ajiaco for them, and having everything ready for when they came: food for the body, food for the soul. We played ping pong and drank dark beer, and told stories of life and death, of the gifts of living and dying, around the fire.

Next weekend we go camping to Mt Rainier, the beautiful glacier mountain south of Seattle. Camping in the small green tent for the three of us, with a few other families and friends from school, and hoping to see the wildflowers in bloom up in the tundra-like setting of the mountainside. Life renews itself; and we keep on loving it.

Saturday, June 28, 2008

Finding stuff

I cleaned up a couple of drawers and boxes with Claudia's stuff. Among them I found a great variety of notebooks with a title, some with one page written, just a couple with more than one page... I never knew she wanted to keep a diary, or a journal with annotations (some of them seem to be thematic, or dedicated to a person), but I was surprised to see so many starts.

I also found a huge variety of little bags and pouches, made with cloth from different places around the world, most of them smaller than an index card, most of them empty. I never realized there were so many of them!

Strange things that surface. At some points I held back my tears, at others I burst out laughing. The drawers are now empty, and there is one box with things to keep. Strange choices, what to keep, and what not... or for who. One day I will know. Or maybe I won't.

Tuesday, June 24, 2008

Soccer and memories

Last weekend the boys played in an out-of-state soccer tournament for the first time (in Oregon), and for the first time in the same team on the big field! Tomas' team had a few players missing so Mateo was invited to fill in as a guest player. It was a beautiful scene to watch, and an exciting tournament that they lost in semi-finals by penalty kicks. Sad way to lose. Watch a short video of some of the play, posted below.

Having the whole team spend time together in hotel and restaurants and soccer fields was a nice experience for them, even though I was running out of oxygen at some point. I wished for something else, longing for conversation and contact past small talk and cat herding, and I realized there is a new reason to be missing Claudia: losing her I lost the person that shares memories of the last 15 years of my life.

Today it is five months since she died. I can now listen to the Bach cello suites, which we were hearing that morning, and be happy for her, and the John Lennon song There are Places I Remember, which was sung at her memorial, without melting down.

I'm writing less on the blog, I guess that, too, is normal. Like everything else. There are 250 postings on the blog now, and I'm not sure where it is going. There is a lot of sadness and inner struggle that I'm not writing about, and a lot of things going on that don't really belong here. I guess it needs to turn into a journal to share our adventures and my thoughts and feelings with those who care to read them, but no longer tied to Claudia, or her death, or our grief... Maybe it is Book 3, the rest of our lives, which may be less compelling or less intense than the chronicle of her battle with cancer and our celebration of her life.

This weekend I read the last "entry" of the book "Eat, Pray, Love" (a book several people had given to Claudia on her last few weeks and I never got to read, and now someone gave it to me again and I finally read it; a light and positive outlook that was a good choice for my mood last week). After grieving a bad divorce and a failed relationship by eating good food in Italy for four months, and praying in an Ashram in India for another four, and wandering about in Bali for yet another four months till she falls in love again, she says: "I was not rescued by a prince; I was the administrator of my own rescue." I say "entry" because the book reads like a blog (only in chronological order, and without the photos and hyperlinks). I can't just take off for a year to grieve and find myself again, there are kids and work and other baggage, and I wonder what my own "book" reads like to someone who is not in my skin. I wonder what it will feel like to me when I go back to read it one day in the future, when all this is past and life is a different color.

Right now all I have is today. I know I am "the administrator of my own rescue", and that it happens one day at a time. There is no "reset", no "shuffle and draw again". It is the same life that goes on, all new, transformed yet unchanged. It will always be "life without Claudia" from now on, but that is not what has to define it. It is me who goes on.

Thank you all for walking with me.

Friday, June 20, 2008

Dreams

Mateo tells me some of his dreams.

In one he is with Tomas on a raft, floating in the middle of the ocean, and when they think they are completely lost they arrive on an island where I am waiting for them and they are safe.

In another one we are driving on the car and I am sent to jail for speeding; he and Tomas have to go do baby sitting to save money to pay the bail to get me out.


Tomas tells me some of his dreams.

He has his friend's cell phone in his pocket, and it keeps falling out and he does not know why.

Thursday, June 19, 2008

Summer Schedule

Tomas and Mateo have graduated now too, with fireworks and celebrations. Mateo got a huge trophy for most points gained during the year: he conquered Elementary School, and is ready to take on Middle School. Tomas had good end of year, with great grades and great energy, and is ready for soccer tournament again this weekend.

Now everyone is out of school: ten weeks of summer vacation. It is a strange thing, to have some plans and yet to think it is all up in the air. There is some camping, lots of soccer, some travel, some goofing around. I wonder how it will play out.

I've been kind of low of energy lately, but slowly recovering. It is all normal, I know. When you think of it, everything is normal, the consequence of something else that happened before, or of some decision, or of some fortuitous event. Our task is just to make the best of it, here and now.

Halfway into the summer is the Swedish Summer Run, for ovarian cancer research and support. We've been part of it the past two years (2006, 2007), with lots of enthusiasm for fundraising, getting a team together, celebrating. This year I've barely managed to set up the web site... Many of you have been asking if we will do it again, and yes, here we are. The team is again called "Around Claudia", and we invite you to cheer on, join or support it in her memory. It is an early morning walk or run, 5k or 10k, on Sunday July 27: six months after Claudia's death.

Save the date, join our team, make a donation... it all goes to ovarian cancer research. One day women will not be dying because of it. Let all mothers die of old age, surrounded by grandchildren and after a long, happy life.

If you would like to support us with a donation, Click here to make a donation.

If you would like to join our team on July 27th Click here to register.

If you would like to view our team page Click here to visit Around Claudia Web page.



Sunday, June 08, 2008

Lifetime Achievement Award

It seems trips are getting shorter and shorter: this one to Bogotá was two and a half days long, most of it travel time, so I had very little sleep to make up for the short visit. A grand total of four hours over two nights. Fortunately I can sleep on airplanes. I would not do this time of schedule for any meeting or conference, but I was happy to do it for Camila's graduation.

Claudia had wanted to be there. She wanted to make it. She would have loved the celebration, the beautiful words from the principal to each one of the kids graduating, the speeches, the music. She would have especially liked the award Camila received from her school: a lifetime achievement award, "premio a su vida", for her excellence in academics, leadership, service, community engagement, sportsmanship, and overall, well rounded personality. It was a beautiful surprise for all of us, especially for Camila. A well deserved one, all her teachers and friends insisted.

Reminiscent of the "Director of Education" award she received while at St Mark's school in Ottawa a few years ago, which also celebrated her academic, leadership and service achievements in 8th grade. Camila certainly makes us proud. All of us. Claudia would have been proud, too. It was well worth the long trip, the short sleep, and the beautiful celebration.

You can write to her at cgomez100100@yahoo.com, I cannot congratulate her enough.

Wednesday, June 04, 2008

Relay and Graduation

Last weekend was Relay for Life, and we had a blast. It was a beautiful afternoon and evening, with many friends coming by to join our walk and celebration, all the way into midnight. We had birthday cake and many hugs. Thank you all for your generous donations to the American Cancer Society through our team site.




The luminaria celebration at 10 pm was especially moving. All the track illuminated by these paper bags in honor of someone fighting cancer, in memory of someone who has died. Each person carrying a story. Each one a whole universe. Walking in silence.















Next weekend is Camila's graduation from High School. Claudia really wanted to make it to it. She will be with us in spirit. I will be there for the occasion, to celebrate with Camila. She will come join us later in July.

Then the following week Mateo graduates from elementary, and Tomas from his first year in middle school. All these celebrations. All these transitions.

Life continues its movement forward.

Monday, May 26, 2008

A Memorable Weekend

It was Memorial Day weekend in the US, and for us it was Seabeck weekend. We've been going to this retreat center with Eastshore and University Unitarian Churches for Memorial Day since we moved here early 2005, so although we've been here only three years and a bit we've been at Seabeck four times.

  1. In 2005 Claudia had not been diagnosed, and we had just moved into our home in Bellevue, after some major renovation work.
  2. In 2006 Claudia had just had surgery and she was in a wheelchair; she had no hair, and neither did I.
  3. In 2007 Claudia had hair and good energy, having just stopped chemo for the summer.
  4. In 2008 Claudia was not there; she was in our hearts, hugs and smiles; she was there in spirit.

I thought about not going at some point, not knowing if it would be hard to be there without her. I'm very glad I did go. A large, loving, caring community that gets together to celebrate, rest, share, walk, sleep... The kids play safely all around the grounds, cared for by the extended community. We had beautiful weather, great food, lots of music and conversation, walks, naps and treats. I enjoyed taking lots of pictures, mostly portraits, with my big camera, the one Claudia gave me last year after closing down her savings account... In each picture she was with me, and I took more than 1000!

On the other side of the weekend Tomas had stayed with his soccer team to play in Memorial Day Starfire Tournament... text messages announced the progress: four games and still undefeated, Velocity made it to the finals. We left Seabeck early on Monday to be with him and the team, and enjoy a hard game that they won, once again: tournament champions, undefeated. It was a huge thrill for all, players, parents and coaches. I hear Tomas made some spectacular saves as goalie during the first two days, and we saw him do some more during this final game, which they won 3-2 (Photo: Tomas in yellow goalie jersey; his team in blue).

Claudia would have been proud, too. She would have a sore throat from yelling and cheering.

We spotted a bench at Seabeck, one of three just recently installed, overlooking the play area and the bay (pretty much like the one behind me on the photo above). We will have it named in memory of Claudia, at Seabeck.

Wednesday, May 21, 2008

Daily life unfolding

I have to slow down. Pick up the pace of daily life as it unfolds, one day at a time. Run in the morning. Make breakfast and make sure the boys get to their bus stop. Get to work and get back home. Make snacks and make sure the boys do their homework. Drive them to soccer music lost homework soccer haircut music new cleats soccer birthday party soccer. How I admire single moms. Single dads. Make dinner and make sure we all get some sleep. Laundry, dishes, vacuum, yard. The irises and rhododendrons are in full bloom. The weeds are taking over. Feed the dog; pick up after the dog. The dog is one too many just now. I'd gladly find him another home. Does someone want Samson for the summer?

We heard beautiful band concerts this week both Tomas and Mateo's school bands. And I get streams of email with plans at their schools to wrap up the year: teachers appreciation night, pool party, volunteer appreciation night, graduation night, field day, drama club presentation, visit to middle school, field trip. I can't participate in any of them; don't have the time, or the energy. Fortunately, Seabeck retreat is coming next weekend, a long weekend due to Memorial Day in the US. What a relief. The theme this year is, ironically, "Compassion Fatigue". Tomas will stay with friends to go to his first soccer tournament. I will miss his first tournament, but there are plenty more to come during the summer.

I wish I could fast forward through all this, suddenly wake up and it is 2009 or 2010, grief is a distant memory, life goes on.

We'll get there, eventually.
One day at a time.
One step at a time.
One breath at a time.

Tuesday, May 13, 2008

Mother's day, birthday coming


Sunday was Mother's day, and it was an OK experience. I had thought of going with the boys to take a letter or something to the little shrub where we left part of her ashes, but they were not too keen on leaving the house Sunday, so we stayed home. In the afternoon we went with Jen & family to see Cirque du Soleil, Corteo. Full of dreams and imagination, in the Cirque du Soleil tradition. A good celebration for mother's day.


Made me think of the many circus shows I've been to over the years, in many countries. We would share circus stories with J when we saw something special, like the act on the photo: a combination of trapeze with bare hands, bouncing off a trampoline. Memorable circus like Moscow and Gasca, with all the bells and whistles, and circus that is hard to forget like Nasca and Sopo, with tattered tents and parades of misery. Circus as a metaphor for life.

Last week I also received another beautiful mother's day gift from Asa. He describes it way better than I would:

Ricardo-

This is Asa Bergdahl, I met you and Claudia through Jann Ledbetter at her 50th birthday in the midst of chemotherapy. I am now once again healthy, and rowing and studying microbiology again at the University of Washington. Recently we raced at opening day, an enormous regatta that attracts a lot of media attention, as well as fans. Our coach's good friend (and ironically the head of breast cancer pathology at the UW) was recently diagnosed with breast cancer. As a result of her diagnoses and the fact that I also am a survivor on the team, we raced in special jerseys with a pink 'W' rather then the usual blue. We did this to honor not just breast cancer but people who we knew were battling cancer, who had previously had cancer and to those whom have lost to cancer. For me this was something that was special, my coaches and teamates recognizing something that at once time had stood in my way.

Anyways, this signified the first time in roughly 105 years that the jersey color had been altered! They were given to people whom were close to the team, whom had been touched by cancer. My coach asked me to keep mine. However, as I thought about what role this team had played in my life, how when I had been receiving treatments I just wanted to get myself back so I could row again, thinking this would be a sign that it was going to be ok, I couldnt help but think about someone who else who had effected me so deeply. I only met Claudia once, we sat in Jann's backyard talking. I remember I could tell without knowing very much about your family or Claudia that she had a great attitude and everyone whom she encountered was a better person for meeting her. That day, in Jann's backyard, gave me a new scope on how I was going to get through what was in front of me, and ultimately as I would find out later a new scope on life.

I dont know if I could ever put words to how Claudia made me feel in that afternoon, I dont know what she said, or what happened, but she has become my inspiration. After the race (we beat oregon state by 10seconds) Claudia drifted into my thoughts and I knew immediately what I wanted to do. I want you and your family to have the jersey. The jersey in-itself I realize is relatively meaningless, but for me it stands as a memento of something that was a pivotal point in my life, and for that I dedicate it to Claudia. If you would send me your address, I would really like to send it to you! I hope you and your family are well

Sincerely,

Asa Bergdahl

--------

Today I had lunch with Asa, and he gave me the jersey. I will proudly wear it next May 31 at the Relay for Life in Issaquah. I invite you all to check it out, join or support our team, and do a lap or two with us around the track, not only to raise funds for Cancer research and support, but also to celebrate my birthday. I will be 44, which is four times the average age of Tomas and Mateo. Maybe we can do 44 laps together!

The event starts at two pm Saturday and ends Sunday at 10 am. Yes, it goes on all night! I will welcome you all to an "open field" celebration, sometime in the afternoon of Saturday. Bring something to eat and drink, and join us for a lap or two around the track. At dusk there is a moving Luminaria ceremony, with candles lit all around the field and a lap done in silence. You can order a few more luminarias in Claudia's memory, on the web or on site early that day.

Mark your calendars, and come walk a lap with us for my birthday. It will be our own circus in memory of Claudia.

Monday, May 05, 2008

100 days: a labyrinth without Claudia


Today I visited the Harmony Hill labyrinth again, as part of a caregiver retreat I attended. It's been 100 days since Claudia died, and it was my first time back there, without her. The people are as lovely, the place is as beautiful, and the labyrinth as compelling as ever. I confirmed I am in another place, another time. No longer caring for Claudia as a cancer patient, I thought I was ready to move on with the rest of my life. But I realized that my role is now to care for the kids. After three months the reality of grief hits them, I've read in different books about the grieving child. Well, it is now hitting the two boys, and they are angry. Angry with life, angry with school, angry with friends, angry with me. Maybe even angry with Claudia, too.

It was strange to be in the retreat as the caregiver whose loved one has died. I remember another retreat in which one participant was in that situation and how hard it felt for the rest of us. I was now that person. I speak from another place, from another time. A time without Claudia. A time with grieving children. Even though I'm doing well and focused on moving forward --finding new challenges and opportunities at work, learning to juggle home alone, happily exploring a starting relationship-- the labyrinth reminds me that the path of life winds and turns, and that I am not alone. The children, especially Tomas and Mateo, need me. In an eerie but very real way, I'm all they have.

I've been reflecting all week about the support group that sustained us during the last two years, and the changing role of the blog as we move into this new phase. Book Two, as I called it. How the blog has helped, how it has shaped and transformed everything. How it brings you all into my living room all the time, as someone told me today. How it prompts many to write to me, even when we don't know each other, like Erika's beautiful letter of this weekend. How it opens a whole other world to the long-lost friends who show up in Facebook or Linkedin and who ask "what's up". A whole lot is up.

Makes me want to invite you all to poke me on Facebook, or even create a group of friends there (I'm the Ricardo Gomez eating watermelon). That is where the social uses of Internet are heading, in the direction of Facebook and Youtube and Blogs, if we are to believe recent studies of Internet trends such as this fascinating one by Morgan Stanley. Youtube as the new mass medium, with new forms of communicating about society. See for example the very simple and powerful "The Story of Stuff".

So I have a blog and a couple of videos on Youtube, check, and pages on Facebook and Linkedin that I don't maintain much, and I sopped taking photos with negative film. I buy stuff on Ebay but I prefer Craig's List. I'm clumsy writing text messages, I'm rarely on instant messenger and I don't use a webcam... In sum, I'm an old fart, by all current standards, especially those of the teen and pre-teen friends of my kids. How can I hope to understand them, let alone support them in their grief? Less screen time, more time together. Fortunately there are also some good counselors around who can help, and f2f time can still make a difference.

For now, GTG. COS. Gotta Go. Child Over Shoulder. See if this spring we get to make another labyrinth with the kids. The one at Harmony Hill is a bit far for a daily walk.

Friday, April 25, 2008

A new beginning

This week it is three months since Claudia died. I lit a candle at dawn for my meditation, and then went running. In the forest, on the trail, I remembered the candle, still burning on my dresser. Life plays tricks.

I was driving home and got distracted for a second; I braked one second too late, and hit the car in front of me. Nobody was injured, and the other car was not even scratched, but mine needs some big cosmetic repair. Life plays tricks.

Today I accepted a job offer for a faculty position with the Information School at the University of Washington, starting Sept 08. I had sent in my application about a week before Claudia's death, I don't know where I got the energy to put it together. Then I went through two days of interviews and presentations (the elusive impact, mentioned earlier), right on the week of a big deadline for an ongoing research project. I don't know where I got the energy for it. Today I accepted the offer, and I know I will have the energy to reinvent myself in that new role. Life plays tricks, and we play tricks with life. I will have to dress up a bit more than last week during the workshop in Costa Rica.

3 months after Claudia's death, 3 years after moving to the Pacific Northwest, 11 years after obtaining a PhD, 18 years after my first publication in a scientific journal... I will turn 44 in about a month, and I'm excited about this new challenge in life. I guess this is better than reincarnation, starting all over again, but with the advantage of remembering all I've learned on the way.

Thursday, April 17, 2008

12 days in Costa Rica

We return from a dozen days in Costa Rica, a country that could be my home but isn’t. Just barely.







7 years ago we spent a month combining work and vacations in Costa Rica, where Tomás turned 5. At the time I was writing “Internet, Para Qué?”, part of a series of publications in plain language (not academic jargon) based on my work on information and communication technologies for community development. Last week Tomás turned 12 in Costa Rica, and he had some scattered memories from that earlier trip. I had many, and I was thrilled to be again combining vacation and work with friends and colleagues I love and respect, old and new, and to organize yet another international workshop with Kemly, about the fifth one in the last decade, in that country.

This time we spent most of the time by the Caribbean, Punta Uva south of Puerto Viejo, a beach that resembles the beaches south of San Bernardo del Viento in Colombia, where we camped many times when I was growing up… the closest you can get to paradise. Watching Tomás, Mateo and Max running waves and playing hopscotch on the sand on these pristine beaches brought back many memories of doing just that for days without end: pure bliss. Jumping waves holding hands with 3-yr old Ben reminded me of Claudia and Camila at the beach too: Camila was also that age when Claudia and I first met. Through all this, we managed to have long conversations with Jen, for the first time in Latin America, as we both enjoyed a week of sun and sand. It is strange and beautiful to see this special friendship unfolding, though we both know I’m processing my own grief of the loss of Claudia.

Grief is a strange thing. I guess the way we lived Claudia’s death, the way she helped us live it with her, makes it a lot easier to cope with her absence just now. We talk about her a lot, and although we miss her deeply, she is with us without pain.

About a year ago, when she started the experimental drug Avastin, we discussed and considered moving down to Costa Rica for what we knew would be her last stretch… we did not know how long it would be, but hoped for a year. We even discussed this with some of our friends there, but they discouraged the idea fearing the medical attention she could get in the country would not be adequate. I now wonder, of course, how life would be had we moved then… how her last few months would have been, and how our lives would be now, without her. This thought was with me a lot, while walking the beautiful beach of Punta Uva or while driving the crazy streets of San Jose. What if… the road not taken.

After a week of vacation it was time to sync back into work: a group of 24 researchers from around the world came together to discuss progress in the research we are doing, and to plan the next steps to finish it over the next few months. I love this subject matter, I love collaborative research, and I love group facilitation. For two days I had the joy of facilitating the group process for collaborative research on public access venues around the world. Some had asked the dress code and I had replied “wear something”. We had a very intense, very personal, and very productive session that ended, on the third day, to a couple of site visits in San Jose and a public event with the University of Costa Rica, and then a party with our hosts, the Sula Batsu cooperative. I was very proud to introduce our work, in the name of the University of Washington, my new home, to the University of Costa Rica, my second home.

During all this, Camila was finishing her pre-ICFES (State exams) preparations, and awaiting a response from the doctor on a few strange shades on the most recent X-ray of her leg. We were hoping Dr would say it’s all OK, but it isn’t: her bone tumor came back and she will need another surgery. We are discussing when, so all summer plans are now on the air. That is why you make plans, to know what you are changing when life happens.

This was most definitely an intense week for all of us. Hard to explain to the customs and immigration officer when coming back to the US: what were you doing in Costa Rica? Vacations and work. What do you do for work? Research at the University of Washington. Welcome. Thank you.

Jennifer had a harder time coming back with the four kids. She wrote to me:

The most poignant moment was at US customs where the woman did not want to let me in without a letter from you and when I told her you had stayed back on business and that we were told we would not need a letter and then she asked me where was their mother and I responded, in front of the boys, “She is deceased” and the woman took in a sharp breath and said, “I’m so sorry” and I said, actually choking back tears, “We all are” and then she stamped the passports and let us through.

Thursday, April 03, 2008

A Crazy Week before Spring Break

A crazy week it has been, with beautiful scenes to share of a variety of evening outings with the kids.

Monday with six kids to a National Geographic talk with photos about reptiles and snakes. Six kids between 10 and 12, quite an adventure! Thanks to Lisa for the first two tickets that got us going.

Tuesday we pick up our neighbor from driver's ed class and go to dinner at Crossroads. Only four kids this time, and four menus for dinner, from four countries around the world. Only at Crossroads!

Wednesday Mateo starts soccer practices (about 15 kids now, but not all with me); we have to run out 10 min before the end to make it to music lessons: Tomas plays the trumpet, Mateo the sax, both have lessons on Wednesday evening. It will be tight!

Thursday we go to a play based on Anne Frank's diary; only two kids, the rest are adults. Beautiful play, despite the terrible reality it reminds us of. We tried reading the diary with the kids, but could not get very far into it. What a different narrative they are used to nowadays...

Friday we stay home, packing. We leave Saturday for Costa Rica, where we will spend Spring break at a cottage on the beach south of Puerto Viejo, just before a research workshop I'm holding there immediately afterward. Four kids will be at the beach house, we're going with Jen, Max and Ben (on the photo). We're all thrilled.

Rucha turned 30 today. We all celebrated her joy. Tomas will turn 12 next week. Seven years ago he turned 5 in Costa Rica as well. Good place to celebrate.

Sunday, March 30, 2008

Cherry Blossoms and Snow

It is the end of March, the first quarter of the year. Cherry blossoms at their best, and surprise snowfalls that allowed for late snowball fights at home.

A little Madness in the Spring
Is wholesome even for the King.
Emily Dickinson (1830–1886)


All is Spring, all comes back to life.
We, too.

Sunday, March 23, 2008

Equinox and Easter

Yesterday we celebrated the equinox, and the beginning of spring. Cherry trees are in full bloom, weather is starting to be warm, and we hung the hammocks. Hanging the hammocks in the yard is an anticipation of summer, longer days, shorter nights, and more time spent outside. We had an ever-shifting list of guests, a barbecue, a bonfire, and an outdoor movie.

It has been a strange easter week, filled with activities with Camila and Irene, culminating with a day of skiing: it was Irene's first experience with snow, and after a while she was able to ski down the slopes with only a few falls. Tomas had had his tryouts for select soccer, so he decided not to go skiing, not to risk a twisted leg or not to be too tired for the tryouts. We're excited that he, too, made the select team this year. We will have two boys playing select soccer all around the Puget Sound, and a busy calendar to match! Soccer continues to be an anchor for both Tomas and Mateo, something to hold on to in the stormy seas of grief.

Tomorrow it will be two months since Claudia died. It feels like two years, sometimes. So much has happened... and the waters start to feel more calm now. We're going to be all right, with a full life to live, with a loving and caring community around us, and with Claudia in our hearts.

Saturday, March 15, 2008

Spring is here after an Uphill Week

Last night it was truly TGIF: Thank God It's Friday. Everything converged this week into uphill paths one after another, and we made it through!

My "Elusive Impact" presentation on Wednesday went quite well, I've received good feedback. It was nice to receive notes of encouragement and company from many of you, far and near, and to see some of you actually show up for it! I saw someone taping it on video, so I may even be able to get it on Youtube if you really want to watch. Now, the presentation was part of a two-day process of non-stop interviews at the University, mostly individual meetings with other faculty, lunch and dinner meetings with small groups, teaching a class on Thursday, and meeting a group of graduate students. Students were the only ones with good enough sense to have fruits and cookies, and we had quite a fun conversation. I told them I envy the energy they display as a group, I don't recall ever feeling that when I was a grad student. So the interview process is over, I sent out my thank you notes, and I can go on with the rest of the busy week. A decision will not be made till end of April, and there are three more candidates for the job.

One of the funny feelings about the interview process was that for academia I could be considered a junior faculty, since my academic experience is limited, but I come with a good baggage of professional experience in the real world. I wonder how that will play out in the selection and decision process, and in my own consideration of whatever is the result of the process too. TBC. To be continued.

Another interesting mountain of the week was the collective production of a report that summarizes and analyzes the results of all the research work of the past few months, research done in partnership with local teams in 24 countries around the world. The comparative analysis process started one month ago. Claudia had good timing and allowed me to get back to work just in time, full of energy and enthusiasm for what has been happening: qualitative analysis and teamwork at its best. Last night I circulated the final document, some 25 pgs plus appendices, to be presented and discussed next week, and then circulated back to all research partners around the world. In a month we all come together in Costa Rica to discuss the results and plan the next phase, taking the research in each country a few levels deeper. It is a beautiful process that has given me lots of energy to help get over my grief and reconnect with life, life without Claudia.

In the middle of these two mountains this week, there has been lots of soccer, of course, and music, and meals, and homework, and rain... I am ever thankful to all the friends to come together and help make things happen, offer rides and lend a hand as we go through all this. I couldn't do it alone. Spring is here with its blooming cherries and plums, even Claudia's redcurrant bush is blooming already in the memorial garden at Eastshore. We had started the week with a good day of yardwork: mowing lawn, pulling out blackberries, tilling the veg garden, cutting down branches. It is now Easter week, a big holiday in most of Latin America, and nature is coming back to life. I appreciate each day the loving community we live in, and as I told the grad students this week, I feel at home here.

The cherry on the icing for the week was the arrival of Camila and Irene. They arrived one day early, after a last minute realization that the tickets were not for Friday but Thursday, so they had a mad rush to go pack and get to the airport in time. They made it all right, and we're looking forward to a less hectic week now that they are here. Irene is my godchild, the daughter of my good friend Nicolas, and I had been wanting to invite her to come for a couple of years. This year she turns 15, and the timing finally worked. Her first stop was to get a digital camera, so she can start documenting her week in full detail. I'm sure she will be uploading her images to Facebook in real time.

Spring is here. This week is over. I smile.

Saturday, March 08, 2008

Relay for Life - May 31

This year we will participate in Relay for Life, an activity organized around the nation by the American Cancer Society to raise awareness and funds to help fight cancer. We will join Jan Ledbetter's team in Issaquah, and we invite you to join or support the team as you can. One of the most beautiful moments of the Relay is a luminaria ceremony at dusk, in which the track field is all surrounded with paper bags with a candle to remember or honor someone we love who is affected by cancer. There will be a couple of luminarias for Claudia.

Two years ago we were there with Claudia, and last year none of us had the energy to set it up, although Claudia did want to participate. This year we will spend the night there as part of this big celebration. Come walk with us, at least for the luminarias lap around the track at dusk.

Also, stay tuned for the Summer Run 2008 on July 27, we will put together a team to remember Claudia at that one this year again.

Thursday, March 06, 2008

Elusive Impact: job interview for faculty position at UW

Next week I'll be going through two days of job interviews for a faculty position at the University of Washington, where I'm currently a Research Associate. Part of the job interview involves a public presentation on Wednesday afternoon, I'd love to see you all there!

I put in my application on the last few days before Claudia died, which was an awkward moment to do so, but then, life serves things at awkward moments all the time. Claudia would be thrilled to know I made it to the shortlist of candidates; she was a university lecturer when we met back in 93, and we have toyed with the idea of me going back to teaching for a long time. Maybe this is Claudia's gift now.

Understanding the Elusive Impact:
Structure and Flexibility in Research Design on Information and Communication Technologies for International Development


Wednesday, March 12, 3:30 pm
Allen Auditorium, University of Washington


Abstract

The introduction of new Information and Communication Technologies for Development (ICT4D) has played an important role in international development programs over the past decade. Despite much hype about their promise, solid evidence of social and economic impact of ICT4D is still hard to find. Looking for results that are indirect, multiple, and diluted over time, innovative research approaches are required. Drawing examples from ongoing international research, we will discuss how interpretive approaches and flexible research design help understand the “elusive impact” of ICT interventions for international development.

Bio

Dr. Ricardo Gomez specializes in the social impacts of communication technologies, especially in community development settings. He is also interested in qualitative research methods, and in group facilitation and process design. He seeks creative ways to communicate complex ideas and research results in everyday language. He has worked with private, public and non-profit sectors around the world, with a particular focus on Latin America and the Caribbean. Before joining the University of Washington he worked with Microsoft Community Affairs, and with the International Development Research Center in Canada. He holds an MA from Université du Québec à Montréal (1992) and a Ph.D. from Cornell University (1997).

Monday, March 03, 2008

Presence, Absence

Grief is a strange animal. Friends have asked me all sorts of things, and I've been reading all sorts of things, and through it all I start to understand the colors of grief. I am strangely at peace, open to embrace the love of life, and the challenges ahead as we reinvent life without Claudia.

It is life with Claudia in our hearts, deeply rooted. But in daily life, it is life without Claudia.

I look at our home and the objects in it, the orange wall that she painted, decorations acquired in different corners of the world, photos hanging here and there, each one whispering a story, a memory, a smile. And they do not produce pain, they my soul's lungs as it takes in the air of life. A few months ago we had talked about whether to sell the house, move elsewhere, and after some consideration we agreed there would probably be no need for it, even though the house can be big for us alone. It is the home we rebuilt and inhabited, and it continues to be our home. And it carries her spirit and her presence.

It also carries her absence. The conversations I still want to have with her, the events of the day, a comment that I want to share and realize she is not there to share it with her. It is all in the relationship, not in the objects. Strange, the objects carry her presence painlessly, joyfully. The relationship, the unfinished conversation, they carry her absence, the hole of her not being there.

We went to a bereavement support group this weekend. The boys don't want to go back, but I want to try it again, just in case. I think we need something like that, they need something like that, but I sometimes wonder. We've prepared well, well in advance, and we are dealing with the loss as best we can. Yet I wonder. Will it get worse? Will it get better? Both? At the same time?

I read more about grief, and I am more able to say: this I feel, this I don't. Life goes on, and we're here to live it in full. With a smile. One day at a time.

Wednesday, February 27, 2008

Three days of love

We returned last night after three days in Bogota (plus two days of travel), happy and exhausted. It was well worth the trip.

Saturday: After an open house at a pizza place, where we had the unique opportunity to meet about 40 friends that could come by, we headed to Camila's school for the "Family Day" celebrations, meeting her friends and teachers, and culminating in the presentation of "The Phantom of the Opera". It was a beautiful day of hugs and laughter, lots of music, and a beautiful performance by the kids at school with a difficult show on stage. They started with a minute of silence to honor the memory of parents who could not be there: Claudia and three more who have died in the last few months. I started crying there, and could barely stop all the way till the end of the show.

Sunday: A beautiful memorial service for Claudia, exactly one month after her death, celebrated by our long time friend Jota. He remembered our very simple marriage celebration by a bonfire at the beach, almost 15 years ago, which he also celebrated. Who would have thought we would celebrate this one together? Claudia's family was all there, plus some other friends. Patricia had arranged the photo poster boards made by Liz, the ones we used at Eastshore, and my friend Tomas played some Bach on the cello. Flavio sang "Gracias a la Vida". We played the photo show and this time it did not stall. We ate some snacks, and lots of tropical juices. No apple juice. It was a memorable celebration, to wrap up our first month of grief, our first month without Claudia, our first month with Claudia in our hearts.

After the memorial we took off to the best complement to the celebration we could think of: a professional soccer match at the stadium. At first we hesitated, since fans can get rowdy and violent, but it was not a very challenging match so it was deemed safe by our local friends. Tomas and Mateo had a blast, enjoying the whole experience as if it was their own team playing. They even got angry at the ref, and learned some new swear words in Spanish, courtesy of 10,000 excited fans around us. One month before, on the day of her death, we had gone to the park to play some soccer after saying good bye, while the funeral home took her body away. It was most appropriate to end the memorial celebration this way.

Monday: A drive around the outskirts of Bogota, to places I grew up in, to share memories with the kids. Breakfast with Arepas in La Calera. A visit to Guamuca, my parents' country place, where we were thrilled to find Pelusa, Camila's old dog, who we thought long dead. A drive around Fagua, with a stop for strawberries and cream in San Jeronimo, where I used to go on a bike when I was about ten. All is the same; all is changed. Camila was a good guide so I would not get lost in the labyrinths of my memories of a different geography.

After three days we flew back home. This is home now, even empty as it feels without Claudia. I wish I could tell her how much fun we had going to the stadium to watch the soccer game. She had wanted to do that before but the kids were too young, the crowd too violent. I know she is happy we went.

Tuesday, February 19, 2008

Third memorial, in Bogota

La tercera es la vencida, we say in Spanish. Or, the third cut is the deepest, sings another song.

The first part of Claudia's ashes were planted under a redflowering currant at Eastshore's memorial garden, and the second part was scattered on Maui's Black Beach. The third part is waiting, the third and last.

This coming Sunday we will celebrate a memorial of Claudia's life a third time, at her mom's home in Bogotá. She is not doing too well herself, so it will be a small, private celebration. The box with Claudia's ashes is already there, together with all the photos we had on display at Eastshore, and recordings of the service here, including the beautiful music.

And we will be there to celebrate too. Crazy times call for crazy actions.

On Saturday Camila's school presents their musical, "The Phantom of the Opera", the graduating class celebration of the school's 30th anniversary. These two feasts on the same weekend were too good to pass. There are enough air miles in Claudia's and my accounts to take us there, and there are empty seats in the flights, even for last minute reward tickets, surprisingly enough. So we fly all the way just for the weekend celebrations, as simple as that.

There will be more people we would like to see, places we would like to visit, foods we would like to eat, but we stick to the essential: celebrations of life, of passage, of friendship, of death. It will be over before we know it.

We will have an "open house" at Archie's Pizza (69 con 10a) between 11 am and 1:30 pm, our single chance to see some friends and family. Hasta pronto!

Saturday, February 16, 2008

Three weeks of non-fiction

Today we realized it has been three weeks since Claudia died. The first week is a big haze, with people coming and going, and preparing for the memorial celebration. It was a beautiful celebration, with beautiful words spoken, and music, and hundreds of friends here and hundreds more around the world, and the boys surrounded by their friends.

The second week we soaked under the rain in Hawaii, watching the whales and playing in the sand.

The third week we went back to school, back to work, back to life. Camila had exams, and is now busy preparing her high school musical, presenting The Phantom of the Opera next Saturday. Tomas and Mateo caught up with missed lessons and started to sense the reality of Claudia's absence. I was thrilled to go back to work, my team offered a welcome lunch on Monday, and came home to celebrate after an all-day retreat on Tuesday... we had planned a party early in November when I started at the UW, but we canceled because Claudia was in the hospital. This week we finally had our party.

Work is going great, with insightful breakthroughs this week about the direction we are heading, and giving me a sense of fulfillment I had not felt in years. I'm so grateful the job change happened back then, 3 months ago (even though it seemed a tough moment then), and to have now this thrill and excitement to go back to it, to help me recharge energies and deal with my grief.

The nights are the hardest, though. This week we were busy every evening, happily sharing with friends in one place or another. But it does get to a point in which all is quiet, all is picked up, kids are in bed, stories are read, and I have to go to bed too, alone, in silence. No matter how much I delay it, I still have to get to it, each night. That is the hardest moment.

I'm glad I continue to write here. It does help me, you know. Thank you all for encouraging me to do so. I changed the title, changed the colors, left two blank pages, and started again. There is no script to follow, no messaging, no calculated talking points. I write when my heart is ready, and it pours out. I love writing, I've always loved it, and I've toyed with writing fiction for many years. But why bother with fiction, when reality is so surreal!

Today I thought of putting the images of Claudia, the photo show I did for the memorial, to play with the song "Gracias a la Vida", sung by Mercedes Sosa. I remembered a scene I have engraved in my heart: over 20 years ago I arrived in a small town north of Nicaragua where the contras had killed a dozen women and a swiss engineer in an ambush. Chantal was the wife of the swiss, and she was playing a guitar and singing this song to her dead husband. His hat was on the coffin and the room was hot and filled with flowers. I taped images of this on video, I took photos, and I could never use them. They were too powerful. I learned about life and death in Nicaragua back then. I still learn. No need to write fiction.

I wonder what ever happened to Chantal, and to 200,000 others killed in the war. I'm still writing. Writing is a form of understanding, a form of healing.

Now I need to go to bed. I will play some more Mercedes Sosa, and hope for sleep and sweet dreams. Dreams are also form of understanding, a form of healing.

Tuesday, February 12, 2008

Soccer is in!

After a dreadful wait, we finally learned Mateo made it to the Select Soccer league in Lake Hills, Bellevue. A major accomplishment for him, the most exciting experience in his life, as he told us tonight over dinner.

One year ago we were very hesitant to have Mateo try out for Select Soccer... and we decided to go ahead at the last minute. He was selected, and not only he had a fantastic season but we gained a fantastic community of friends and caring over all these soccer practices and games around the Puget Sound. Soccer kept him focused, having something to look forward to, something to keep his mind off Claudia and her health. This year we did not hesitate both Mateo and Tomas would try out for it again, although it means a huge commitment of time, money and logistics to keep up with practices and games at a higher level than recreational league.

About a month ago Mateo told me he wished mom would not die in about a week, as we had been talking, but that she would live long enough to see him try out and make it to the Select Soccer team. Today I told him I'm sure she is very happy for him, and we're all very proud that he made it to the team. It will be tough, but well worth it, I'm sure.

Sunday, February 10, 2008

Book 2: Life without Claudia


We return from the beach to find a very empty house. My bedroom is empty. My bed is completely empty. This is when it finally hits me: Claudia was right. It will be a lot more difficult for me, I stay, than for her, she moved on... The last two years were easy. This is now the beginning of the rest of our lives, of life without Claudia.

We left some of her ashes on the Black Beach recommended by Fabiola. It is supposed to be a beautiful drive on a road that winds along the rugged North coast of Maui, but we did not see much: it poured the whole time going there and coming back, with a short respite the half hour we were there. The weather was also crying with us. Claudia finally made it to Hawaii.

The rest of our stay was uneventful: nice beaches, though rainy and cold. I watched the boys play in the water and in the sand; watched the whales cavorting in the bay; watched the honeymooners stroll. A whole lot of couples in honeymoon, and I felt at the other end of the road. What kind of moon is it, for it is certainly not honey?

The first day back I felt the true depth of her absence. It hit me like a blunt blow that left me gasping for air. I tried to be busy with cleaning, cooking, organizing. I will now be cooking, cleaning and organizing without her. I cooked lunch crying. I now think of the wedding cake of Like Water for Chocolate, cooked with tears. Then Mateo made dinner, his first pasta and tomato sauce ever. I ate dinner, still crying. But a good cry helps, so we went to a family dance party at church. The same great hall of the memorial service a week earlier, only this time a rock band was playing and lots of kids were jumping and running around. How things change, in such short time!

Mateo did his tryouts for Select Soccer, yesterday and today. He did well, apparently, and we should know the coach's selection for the team tomorrow. Then, at the end of the day, Tomas' soccer team had the end-of-season party. The team that had come in soccer jerseys to the memorial service. The team that Claudia cheered for till the last game. They had wristbands in her honor, and a new team award, the "Claudia Martinez Inspirational Award", given to Tomas this year, with room for seven more recipients to come in future years. The whole team lived through Claudia's struggle and her death. Now the whole team grieves with us.

I said I would stop the blog. "La Salud de Claudia" is no more (you can still post comments on the message the day after her death). But many people wrote back in protest, in kind invitation to keep on writing, to keep on sharing, if not for me, for the kids. Even Tomas asked me not to stop writing, and Camila would not ask, but was happy to hear I would continue. I knew I would keep on writing, the issue was where. So after much thinking (the beach helped for this too) I decided to start Book 2, "La Vida sin Claudia". Postcards from grief.

I love writing, and I love the conversation that I maintain with all of you around the world, around the block, through this blog. It is my channel, my therapy, my company. I agree, it would be a mistake to give it up just now. So I will not change the main address of the blog, just the title, the look, the nature. If for the past two years I wrote about Claudia, I will now write about not her. Life without her. This pain is for me alone to live, but I don't have to go through it alone.

Welcome to the rest of our lives.

Saturday, February 09, 2008

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Friday, February 08, 2008

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Saturday, February 02, 2008

Memorial service, end of the blog


Today is the memorial service, a big celebration of Claudia's life, friendships and lessons. We expect the church to be at full capacity, and a huge team of friends have come together to help prepare the event. We will have music, food, memories and many hugs. A few days ago I posted the photo show I made for the occasion, and a few other messages written in the course of the week, which I had kept hidden till now, just to give you all the space to write your own comments.

I have received hundreds of loving messages over the past 10 days, and I have not been able to reply to most of them. There are more than 70 posted on the comments section of last week, and they may continue growing as people find their words. Thank you all, each one of you, from far and near, for your love and support. It has been a pleasure, a privilege, a thrill. There have been friends from all over the world, friends from long ago and from the last couple of years, even friends we don't know who have shared their love and care, their admiration for Claudia, and their appreciation for this blog. I can't thank you enough for being there with us; for reading on.

Many have asked me what will I do with the blog.
Many have asked if I will keep on writing.
Many have suggested I should publish it.

I started this blog as a way to share news about Claudia's health, and 227 postings after it turned into way more than that: a testimony to our family's struggle and relationship with life, health, friendship and death. Share Claudia's life, share Claudia's death. From now on, it would be "share our grief", as we celebrate and mourn, and recover, and move on, without ever forgetting her, always loving her. "Share our life". But that is another blog, another book.

I will not write on this blog any more, and I will miss it badly: it has been my outlet, my conversation with all of you, my confident, my friend. I cry in advance at the thought of not writing here any more. I will keep on writing, but I will write other things, elsewhere. Maybe I will even start another blog, as I have seen some of you do over the past few months. I will keep on writing email, so don't stop writing. I still listen to the phone messages, so don't stop calling. I guess one day I will start picking up the phone again, too. Forgive me for not coming to the phone much over the last few days (or weeks).

Will I publish this blog? I would love to see something published out of it, if it will help many others go through their own battles with cancer, with life, with death. I'm not ready to work on editing it, though, but some of you may. Or you may know of an editor who does. Let me know. For now, this is the last I will write here.

Thank you all.

Friday, February 01, 2008

Words for Claudia at memorial service

A Celebration of the Life of

Claudia Martinez

July 8, 1963January 24, 2008

Prelude

There Will Never Be Another You Harry Vaughn

Ringing of the Bell

Introit

When You Were Born Cherokee Saying

When you were born, you cried and the world rejoiced.
Live your life so that when you die, the world cries
And you rejoice.

Welcoming and Call to Worship

Welcome Dear, Good People. It is good that you have come this rainy, sunny winter’s day. Thank you for adding your heart and spirit to this service in which we shall honor and celebrate the life of Claudia Martinez.

Let us gather up our hearts and minds and form ourselves into a community of memory and hope. Let us open our hearts and minds to the spirit of Love and Life, the Spirit of God, the Mystery and Miracle in which we live and move and have our being so that shining beneath our sadness, we may once more affirm the joy of life. Let us place ourselves in the care of a Larger Love made manifest in the hands and arms of a caring community and made visible through the verdant earth. Let us trust in a Gentle, Encompassing Love made intimate to us through a still, small voice offering hope and bestowing peace.

Chalice Lighting

The Flaming Chalice is the symbol of Unitarian Universalist faith and tradition. We light it this afternoon to remind us that we are gathered in a time and space made sacred by our love and our grief, made holy by the values and hopes, the commitments and truths we hold and cherish as good and true and beautiful.

In the presence of death we light the chalice because:

A human life is sacred.

It is sacred in its being born.

It is sacred in its living,

And it is sacred in its dying.

I invite you to join in the Chalice Response printed in your order of service.

We light this chalice to remind ourselves to treat all people kindly because they are our brothers and sisters; to take good care of the earth because it is our home; and to try to live lives filled with goodness and love because that is how we will become the best men and women we can be.


Reflection on Life and Death

I am profoundly grateful and feel it a tremendous privilege to have been asked to help celebrate and honor Claudia’s life this afternoon. Claudia was simply a terrific human being. I thoroughly enjoyed her company and her conversation. And, at the same time I must tell you: I wish with every fiber of my being that you and I did not have to be here. I would so much prefer that we were off playing games or music, preparing the garden for planting, or visiting with friends. I wish we were reading amazing stories or walking on gorgeous trails, or that we were doing the things families do to keep the household moving forward (which is a fancy way of saying chores). I wish we could all be off and about doing the things that Claudia loved to do, living the life she wanted us to have.

I know in my bones and believe without regret that the circle of life and death does not turn according to my will and whim. I know that there is nobody to blame or accuse and that the God of Love does not single us out for suffering. I know in my head all this is true; still, in my gut, in my heart, I feel an undeniable sense of not-rightness and unfairness that she should pass away and her family and friends and communities of belonging should be hurled into such sadness as we feel.

We grieve. We are sad. We feel emptied; all because we loved her and because we love and care about one another. If we did not care, then we would feel no sorrow. But that would be an empty life indeed—to feel neither joy nor despair, love nor grief. And if Claudia taught us anything—and she taught us much—it is that life is a gift and love is the first of life’s gifts.

And so, I say that Claudia’s life was no less wonderful, no less beautiful, no less a blessing because it closed in her 44th year.

When we are born, life gives us two commands; that is all: Go forth and live. Return and die. This is the never-ending cycle of birth, death, birth. The same Life force that pushed us out into life, draws us back, like the tide, to return and mingle once more with the ocean of eternity.

Through these portals of birth and death we are given a chance to live. To live, to grow and to explore the abundance of creation. To live, to practice the arts of love and friendship, of creative expression and firm resolve. To live, to know the joys of playfulness and the frustrations of our own limitations and undeniable flaws. To live, to make of our lives a thing of beauty that never dies, and so leave the world a better place than we found it.

The circle of Claudia’s life was complete and full and precious because the measure of a life is not its length, nor the size of our monument when we die, nor the bulk in our wallet or the length of our obituary. The measure of a life is whether we lived. The true measure of our lives is found in the love we shared and the good we did and the comfort we offered, the sorrows we faced and overcame. The meaning and legacy of our living is to be found in the challenges we transcended and the life we shared, and the beauty we offered and the kindness we showed to one another, and the ways we harmonized our living with music of the spheres and with the moral arc of the Universe.

Claudia knew how to live. She was a wonderful mother, the best mother, a loving and fun-loving partner and spouse, a great friend and confidant. She had a power and a presence that belied an old soul, the kind of soul in whose presence you wanted to be because somehow you always felt better after bathing in her light. Practical, down to earth, quick-witted and smart, Claudia showed us how to live with dignity, love and gratitude till the day we die. Her never-ending love helped her stay with us as long as she could; and when it was time for her to leave, her love enabled her to let go gracefully, gratefully, without fear, at peace with the life she bequeathed to us and with the Larger Life to which she returned.

I know this to be true because life is stronger than death, and love transforms grief into gratitude.

Therefore let us celebrate and give thanks, celebrate the life of a remarkable and singular woman: wife, mother, daughter, sister, friend, neighbor; our guide, mentor and teacher; our source of solace, wisdom, wit and hope; our model of compassion, courage, calm and enthusiasm, like when she would cheer at Tomas’s and Mateo’s soccer games as if she were attending the World Cup.

The poet writes:

When you are sorrowful look again in

Your heart, and you shall see that in truth

You are weeping for that which has been

Your delight.


Prayer and Meditation

I invite you to join in a time of prayer and meditation.

Gently close your eyes.

Breathe deeply.

Breathe and feel the breath of life coming into you and passing back out into the larger world.

Feel the heartbeat of life pulsing within you. This is an eternal rhythm. Truly, we are part of a sacred whole.

Acknowledge your private loss—what is gone from your life.

Feel your grief. Feel your anger. Feel your fear, confusion, sadness. Without blame, without reproach, allow your emotions to rise and your tears to fall.

Feel also your heart’s compassion, your yearning to comfort and to share the grief of those who suffer Claudia’s death most acutely.

We send our compassion and love to Ricardo and to Camila, Tomas, and Mateo. May our love and compassion flow out toward all members of Claudia’s family, those who are present and those who are with us in heart and mind.

We send our love and compassion also to the people in the communities of her belonging who journeyed with her and to whom she gave so much; to the good people of Puesta del Sol, students and parents, teachers and staff; and to the members and friends of this congregation and her neighbors and friends near and far. May all whom she loved be comforted by the balm of our combined affection and compassion.

Now, let your memories of Claudia float up before your mind’s eye. Remember the good times and the hard times you shared. The trivial and the significant things that passed between you. Remember her. Remember the sound of her voice and the way she moved. Remember her smile and her eyes and the feel of her hand. Remember the gentleness of her spirit and the strength of her character, the power of her love and tenacity of her will.

Remember these and store them in the depths of your heart and mind where they shall forever bring you joy and gratitude.

Remember, too, any sharp words that may have passed between you, the things left unsaid and undone, the love never spoken, the offense never forgiven, and the apology never offered.

Remember these, and then let them go. ... Let them go. ... Let them rise like smoke from a spent fire. ... Let them be thinned and blown away by the winds. Let all things be right between you and Claudia in whose honor we are gathered.

O Good and Gracious Spirit of Love and Life, God of All Names and No Names, experienced as Love, receive gently the life and spirit of Claudia Martinez. May we find a measure of comfort in knowing that her suffering is past and her spirit is now in peace. We give thanks that she lived and moved among us, enriching our lives and deepening our appreciation for the precious fragility of the life we share. May the love of this hour be balm for our wounds of grief, for greater than death is life and more lasting than pain is love.

Let us now pause in silence that we may reflect in heart and mind, each according to his or her own custom and tradition.

We offer these our thoughts and prayers, spoken and unspoken, in the name of every child of every age in every land. Each is the hope and the light of the World. Blessed Be, and Amen.


Musical Celebration

Psalm 23 John Rutter


The Lord is my shepherd; I shall not want.


He maketh me to lie down in green pastures:
he leadeth me beside the still waters.

He restoreth my soul: he leadeth me in the
paths of righteousness for his name’s sake.

Yea, though I walk through the valley of the
shadow of death; I will fear no evil: for thou
art with me; thy rod and thy staff they comfort me.

Thou preparest a table before me in the presence of mine
enemies; thou anointest my head with oil; my cup runneth over.

Surely goodness and mercy shall follow me all the days of my life;
and I will dwell in the house of the Lord for ever.

Story for All Ages

Badger’s Parting Gifts Susan Varley

Badger was dependable, reliable, and always ready to help when help was needed. He was also very old, and he knew almost everything. Badger was so old that he knew he must soon die.

Badger wasn’t afraid of death. Dying meant only that he would leave his body behind and, as his body didn’t work as well as it had in days gone by, Badger wasn’t too concerned about that. His only worry was how his friends would feel when he was gone. Hoping to prepare them, Badger had told them that someday soon he would be going down the Long Tunnel, and he hoped they wouldn’t be too sad when it happened.

One day, as Badger was watching Mole and Frog race down the hillside, he felt especially old and tired. He wished more than anything that he could run with them, but he knew his old legs wouldn’t let him. He watched Mole and Frog for a long time, enjoying the sight of his friends having a good time.

It was late when he arrived home. He wished the moon good night and closed the curtains on the cold world outside. He made his way slowly down to the warm fire that was waiting for him deep underground.

He had his supper and then sat down at his desk to write a letter. When he had finished, he settled down in his rocking chair near the fire. He gently rocked himself to and fro and soon was fast asleep having a strange yet wonderful dream like none he’d ever had before.

Much to Badger’s surprise, he was running. Ahead of him was a very long tunnel. His legs felt strong and sure as he ran towards it. He no longer needed his walking stick, so he left it lying on the floor of the tunnel. Badger moved swiftly, running faster and faster through the long passageway, until his paws no longer touched the earth. He felt himself turning end over end, tumbling and falling but nothing hurt. He felt free. It was as if he had fallen out of his body.

The following day Badger’s friends gathered anxiously outside Badger’s door. They were worried because he hadn’t come out to say good morning as he always did.

Fox broke the sad news that Badger was dead and read Badger’s note to them. It said simply, “Gone down the Long Tunnel. Bye Bye, Badger.”

All the animals had loved Badger, and everyone was very sad. Mole especially felt lost, alone and desperately unhappy.

In bed that night Mole could think only of Badger. Tears rolled down his velvety nose, soaking the blankets he clung to for comfort.

Outside, it began to snow. Winter had begun, and soon a thick layer of snow hid the animals’ homes, where they would stay snug and warm during the cold months.

The snow covered the countryside, but it didn’t conceal the sadness that Badger’s friends felt.

Badger had always been there when anyone needed him. The animals all wondered what they would do now that he was gone. Badger had told them not to be unhappy, but it was hard not to be.

As spring drew near, the animals often visited each other and talked about the days when Badger was alive.

Mole was good at using scissors, and he told about the time Badger had taught him how to cut out a chain of moles from a piece of folded paper. Paper moles had littered the ground that day. Mole remembered the joy he’d felt when he had finally succeeded in making a complete chain of moles with all the paws joined.

Frog was an excellent skater. He recalled how Badger had helped him take his first slippery steps on the ice. Badger had gently guided him across the ice until he had gained enough confidence to glide out on his own.

Fox remembered how, when he was a young cub, he could never knot his tie properly until Badger showed him how.

“Starting with the wide end of the tie, it’s right over left, once around to the back, up, then down through the crossover and, holding the back of the tie, push the knot up to the neck.”

Fox could now tie every knot ever invented and some he’d made up himself. And of course his own necktie was always perfectly knotted.

Badger had given Mrs. Rabbit his special recipe for gingerbread and had shown her how to bake gingerbread rabbits. Mrs. Rabbit was well known throughout the countryside for her excellent cooking. As she talked about her first cooking lesson with Badger, so long ago, she could almost smell the wonderful fragrance of gingerbread fresh from the oven.

Each of the animals had a special memory of Badger—something he had taught them that they could now do extremely well. He had given them each something to treasure: a parting gift that would become all the more special each time it was passed on to others.

As the last of the snow melted, so did the animals’ sadness. Whenever Badger’s name was mentioned, someone remembered another story that made them all smile.

One warm spring day as Mole was walking on the hillside where he’d last seen Badger, he wanted to thank his friend for his parting gift. “Thank you, Badger,” he said softly, believing that Badger would hear him. And…somehow…Badger did.

A Visual Tribute


Memories of Gratitude and Love



Rosario Umana “Grace” January 30, 2008

Some call it a coincidence…others “synchronicity”; spiritual teachers talk about awareness, consciousness, presence. For Joseph Campbell they are moments of Bliss: “Find a place inside where there’s joy, and the joy will burn out the pain. Follow your bliss and doors will open where there were no doors before.”

Christians call it “Grace.” The Grace of God. Free, spontaneous it is given to us, it finds us, we let these moments of Grace touch us. Moments of joy, of sorrow, moments of Love.

After Claudia’s death, I have been looking at these moments with her, they have become real again, and in silence I say, “Gracias, Claudia.” Thank you, God, for her, for her life, for moments together. Here are some of these moments of Grace I wish to share with you here in this beautiful Sanctuary, where all we are doing together in her memory becomes sacred.

Ricardo and Claudia are starting their life together. That night at the beach in Playa Culebra, our Caribbean Shore, we are walking, looking at the shining full moon that becomes hundreds of moons, the reflection in each wave, on the white sand, on the wet algae with plankton touching our feet as we walk and talk about the marvel of the moment together.

It’s Easter Sunday, 1996, in Montreal. My son and I participate in the Miracle of Life. She is in the tub during the last stage of labour, Tomas is coming out, my son picks her up, rushes to the bed and we both help her push Tomas out. I still cry in joy, all the Power and Strength and Love here with us three with a perfect baby, Tomas.

Mateo’s birth is in October. Again I come from Colombia to be her doula. We walk up and down the sidewalk by the St. Lawrence River in Montreal admiring the marvel of fall colors near the hospital. Later we have a family party of Life with Tomas, 18 months, Camila then 6, Ricardo and I alternating from pushing to making photos of Mateo’s birth. Such joy. Gracias, Claudia.

Another moment of bliss. The afternoon light comes from the window looking west in Bogotá. My mother, Enriqueta, teaches Claudia bob pin lace making. She gives her a “machine,” pins, patterns and threads. Now I am connected with the joy of my mom, for we wanted to learn how to do her lace.

Summer 2004, the whole family is together at last. Alejo is here, Maria, José and their girls are in Canada. We go camping in Bon Eco, Ontario Provincial Park. Our 5 grandchildren play, go fishing, we cook and light the bonfire at night. Ricardo and I look and give thanks to God for this beautiful family of 12, together. Claudia loved camping, nature, simplicity in life.

Claudia invites us both for lunch to an Indian restaurant she likes. Our son Ricardo is away in Tunisia. As she comes from a medical appointment, cancer is confirmed. We three hug and cry and talk and cry again. We give her comfort and love.

Back to Bellevue in April of last year we join the queue of family and friends sending them love, light, compassion and prayers from around the world. Their main support comes from here, the boys’ school, from Harmony Hill, from the community of the Unitarian Church. They have found brothers and sisters with love and support, kindness and generosity, time and all the love. Gracias.

I have lived the pain of Claudia’s cancer all these years. Her strength has been our strength. One of her last gifts is to talk about death, what goes on in her body; she shares her feelings, her pain. And Ricardo becomes her word through the blog. What a gift!

As parents, we have been able to walk with her and Ricardo in our hearts each day. During her last days she is surrounded by love, the best support, compassion; we talk about joy in her life and her illness. She has been purified. We all have. The last morning I give her the last Blessing in the name of her mother and mine. Next day she dies in peace, the two of them alone listening to Bach’s Cello Sonatas. In Grace. In the Love of God. Now we let her go. We let her return to Eternal Love, free, joyful, and filled with the Grace of God.

Now she is born to Life Everlasting.



Ellen McCartan

Claudia was my closest friend for three years. I feel sure that she is still with me, giving advice, laughing, marveling at how similar we are (even though our early lives were very different), and enjoying our differences. When I met Claudia early on in 2005, I felt as if we had known one another – as if we had always been friends. I heard her tell someone else that she had felt the same way. Who knows why that happens, but we both knew from the beginning that we had something special and we’d better hold on to it. Claudia was better at that than I was – at showing her love and care and arranging to get together, but not because I didn’t feel the same way. That was her clear strength – reaching out to people and indulging in the richness of friendship.

Claudia taught me what really are life’s most important lessons – to live in the moment, to love when we have the chance, to enjoy life’s spectacular gifts however fleeting, to be present and thoughtful in day-to-day activities, and to get through life’s horrible times with determination, unimaginable strength, and hope. And of course, one does that by giving and receiving love openly.

Claudia showed all of us how life can be at the end, how we can worry about others who are worrying about us even if we are in great pain or confusion, how we can draw people together for strength (theirs and ours), how we can dream the impossible and change outcomes in surprising ways.

I don’t believe there are many people who live life so intentionally, who take charge of what they can and of who they can be. In that way, Ricardo and Claudia were a perfect match, as she knew so well. I saw and felt their love at ever interaction. I worried more about Ricardo many times because of how deeply Claudia loved him and therefore how deeply he would feel her loss.

Of course her three children meant the world to her, and leaving them was – even for Claudia – almost more than she could bear. She knew each of them deeply – their strengths, their individual needs, their passions – and wanted more than anything for them to have normal everyday childhoods – with a lot of free outdoor time! When I think about how Mateo delighted in the beauty of the Cascade Mountains and the sunset to me once while skiing, and when I thing about how Tomas so thoroughly enjoyed his soccer this year – even in our cold, wet fall and winter weather – and when I remember how Camila lovingly described a treasured camping spot near Ottawa and talked of going back, I am reminded once again that Claudia will most definitely live on.

I have so many treasured memories:

talking to Claudia one spring afternoon in my garden not long after we first met – about our children, life in Bellevue and the lives we had led in other places, travel, gardening, our hopes for the future;

swimming with Claudia in my mother-in-law’s lake in July, chasing after the boys’ canoe;

camping in June with school friends, living that moment and not looking ahead;

attending an East Shore Women’s Retreat where I learned about Claudia’s childhood and family, and we had a wonderful walk in the woods with Sue Dehmlow;

an evening out with Claudia, Ingrid Durenberger, and Michelle Scanlan, listening to Claudia’s hopes for healing and a unique experience she had had in Guatemala;

but most of all, I will treasure all the conversations we had – some deep, some not, by phone or in person – but always with a level of commitment and warmth and listening that was so unique to Claudia.

She gave me a legacy of friendship, strength and hope that has changed me permanently. Gracias, Claudita. Te quiero. Te recuerdo. Te echo de menos. I love you. I miss you deeply. I will remember you always, my dear friend.



Lisa Hasse

There are some people in this world who are admired for having the gift to be truly present in their lives and interactions with other people. Claudia had the unique ability to live for the moment and to be fully present in each moment. This ability gave her a deep understanding of those around her…a gift to see beyond the surface. It gave her the strength to embrace her life in the face of terminal illness and to make friends, travel, and continue to dream despite the enormity of what she faced.

I admire Claudia for her positive attitude, always looking for ways to celebrate life…not just moments of obvious success, but all of life’s ordinary moments. Once Claudia told me a story about a road trip she took with Camila when Camila was small. While driving, Claudia became lost and Camila started crying, because she was frightened at the idea of not being able to find their way. Claudia, wanting to comfort Camila said, “Come on, we have a map and a full tank of gas. We are lucky; this is an adventure. Sit back and enjoy the ride.” I love this story because for me it captures Claudia’s spirit and the way she faced life, illness and raising Tomas, Mateo and Camila. Life to Claudia was an adventure to be embraced, good or bad, and its moments, small or large, are meant to be celebrated. It is this spirit of adventure that she shared and has passed on to her family. It is this spirit that draws people to her. And it is this spirit that allowed our families to create wonderful memories in the face of illness.

Last summer my family and I had the pleasure of meeting the Gomezes at an abandoned house that is across the street from their home. For the short time we were there exploring, a neighborhood eyesore changed into a haunted house and stories were invented of the people who had lived there. I felt both fear and excitement as this ordinary house came to life. It is this ability to turn the ordinary into extraordinary memories that I love so much about all the Gomezes. Claudia and Ricardo should feel so proud of having passed this ability on to their kids. I see this gift in them all the time, and I know Claudia’s spirit lives within and around them. It is this spirit that will give them strength.

Shortly after Claudia had returned home from the hospital for the last time, I had the pleasure of sharing the most incredible morning with her. That morning when I arrived at her house I was feeling conflicted. I wanted to be strong enough to tell her how important she was to me and my family, but the thought of it was so overwhelming that it left me speechless. Claudia reached out and gave me permission to say good-bye. We had the most wonderful conversation. All the outside voices were silent, and for that short time we were able to take advantage of the opportunity we had been given. At that moment, I realized, only a truly amazing person has the strength to say good-bye and selflessness to spend her last bits of energy consoling the people she is leaving behind. When I left the Gomez’s house that day I felt happy. I left knowing that although Claudia’s body was tired and could not last much longer, she would never leave.

There are so many things I admire about Claudia that I cannot share them all, but in closing I want to share with you some thoughts that we discussed while Claudia was preparing for her death. Today is meant as a celebration of life and all the wonderful things it has to offer. We are not here to say good-bye but rather to celebrate that Claudia will live on; as a star, a butterfly, or maybe just simply as treasured memories of someone who matters…who counts…and, despite her loss of life, is a winner. Claudia may not have survived her cancer, but she certainly conquered her death. Claudia faced her death with such grace and peacefulness that it allowed those who love her to drink a beer with her, share a hug, cry and let her physical body go peacefully with nothing left unsaid.

Claudia, I love you. I will keep you with me and thank you for being an inspiration to us all.

Musical Celebration

In My Life Lennon and McCartney

There are places i’ll remember
All my life though some have changed
Some forever not for better
Some have gone and some remain
All these places have their moments
With lovers and friends i still can recall
Some are dead and some are living
In my life i’ve loved them all

But of all these friends and lovers
There is no one compares with you
And these memories lose their meaning
When i think of love as something new
Though i know i’ll never lose affection
For people and things that went before
I know i’ll often stop and think about them
In my life i love you more

Though i know i’ll never lose affection
For people and things that went before
I know i’ll often stop and think about them
In my life i love you more


Memories and Appreciations


Words of Affirmation

How lucky we were to have known Claudia! How lucky we were that for a lifetime or for a few brief years she shared with us her particular light and personality! How fortunate for the world that someone of her integrity and caring lived and moved and had her being among us. Claudia Martinez was a gift and a blessing. Her life was precious beyond measure.

We affirm that by her love, her precept and her example, she helped us become the best men and women we can be. Within the circle of her days, she touched our lives in ways immense and small, and each time our lives touched, we were blessed. She taught us how to live lives filled with goodness and love and how to build community through caring and creativity. She showed us how to live according to our values, and how to be grateful for the simple and the elegant blessings of life. She showed us how to find and to appreciate beauty on the dreariest day and how to welcome life, come what may.

And though her life is now ended, surely the good she did, the love she evoked, the beauty and joy she added are not gone. They live on in the work of her hands and the lives she touched, the people she loved.

And so we do affirm this hour that the Life of Claudia Martinez was a blessing to us all. And we do give most tender thanks for her life, her life now come full circle.

Hymn

Lean on Me Bill Withers

Sometimes in our lives we all have pain, we all have sorrow,
But if we are wise we know that there’s always tomorrow.

Chorus: Lean on me when you’re not strong
And I’ll be your friend, I’ll help you carry on.
It won’t be long ‘til I’m gonna need somebody to lean on.

Please swallow your pride if I have things you need to borrow,
For no one can fill those of your needs that you won’t let show.

Chorus

So just call on me, brother, when you need a hand.
We all need somebody to lean on.
I just might have a problem that you’d understand.
We all need somebody to lean on.

If there is a load you have to bear that you can’t carry,
I’m right up the road, I’ll share your load if you just call me.

Chorus


Words of Committal

Now it is time to say good-bye. Now it is time to pick up our lives and return to living. Life moves on. Now is the time to begin to turn our faces toward the sunrise, to move on in our living, strengthening and supporting one another, as Claudia most assuredly would have us do, holding on to one another, loving one another, being gentle and honest and kind to each other, rejoicing in the miracle that is our lives.

Life moves on and we leave our dear beloved not so that we may forget her, but that we may continue to fulfill the life she bequeathed to us. Life moves on. The wheel of life turns. The wounded heart knits together. Life continues. Love abides.

Though our sorrow is great, so too is our gladness, for never has a truly evil thing befallen a soul who, like Claudia, lived life and left it with integrity, good humor, honor and love. And so we do, this hour, commit the essential spirit of Claudia Martinez to the care of the Sacred, Eternal All from which it came, her body to the earth from which it emerged, and her memory to our heart’s gentle embrace where she shall remain as a warm, guiding presence. We leave her in peace, as she leaves us, in peace.

Closing Prayer

Please join in the fellowship of prayer.

Peace, my heart, let the time of parting be sweet.

Let it not be a death but a completeness.

Let love melt into memory, and pain into song.

Let the flight through the sky end

In the folding of your wings over the nest.

Let the last touch of your hand be gentle,

Like a flower of the night.

Stand still, O Beautiful End, for just a moment

And say your last words in silence.

I bow to you, and hold up my lamp

To light you on your way.

Thank you, Claudia. Thank you!

Be at peace, and fare you well. Amen.


Benediction

Go now in Peace.

Go for Peace.

For those of you who know God, may God travel with you.

For those who seek to embrace Life, may Life return your affection.

And for those who seek a better path, may a way be found and
the courage to take it, step by step.

Blessed Be. Shalom. Salaam. And Amen.


Postlude

Reception

Rev. Peter J. Luton
East Shore Unitarian Church
Bellevue, Washington
February 2, 2008


Thursday, January 31, 2008

Planting a tree, going to a beach

Today the rest of my family arrives. My brother from Halifax, my sister from Ottawa. Camila comes back from Colombia, after her school trip to the island. My parents are here, after a brief stint in the San Juan Islands. We will be all together to celebrate Claudia one last time.

Saturday morning we will plant a Redflowering Currant in the Memorial Garden at Eastshore Unitarian Church; a way of giving back to the community, nourishing the soil for a bush that will bloom in spring right outside minister Peter's office window.

When I picked the ashes at the funeral home this week they asked if I had any questions. I was going to say no, but then wondered out loud what was the best way to split the ashes in three piles: they offered to do it for me, and after a few minutes came back with three containers the size of a VHS boxed set of movies. We will send one to Claudia's family in Colombia, where they are preparing a memorial service next week, and we will take one with us to Hawaii, where we will go next week.

Claudia and Camila have wanted to go to Hawaii for a long time; two years ago I had a conference invitation there and we were all going together, but we had to cancel, since Claudia had just been diagnosed and started chemotherapy. A few weeks ago I suggested that could be the place we could go to after all was over, and here we are, packing our bags to go spread Claudia's ashes in one of the beaches there. She got to go to Hawaii after all.

Tuesday, January 29, 2008

47 weeks, 47 pebbles

It was 47 weeks ago that we went to San Juan Islands and started treatment with Avastin. Back then we discussed survival rates, measured in weeks: 45 to 54 weeks. I started collecting pebbles in a jar by the fireplace, one for every week she lived.

There are 47 pebbles. The jar is half full. Or half empty.

She is no longer here, and everything around us speaks of her presence. The house is both full of her, and completely empty.

Monday, January 28, 2008

Photos for memorial service

Hard to choose from 1000 photos
down to 100
and down to 10.

5000 days together.

This is the slide show we will be using at the memorial service on Saturday, with the music we were listening when she died.

Sunday, January 27, 2008

Two make a pair

I discovered while jogging this morning
that the single sock that came out of the dryer
is an unique incomplete pair.

I remembered caressing her feet the morning before she died.
She had only one sock, and her foot was very warm.
She died wearing just one sock,
and she took it with her.

She left me the other one. My part of the pair.

No owls have come to visit me again while jogging.

Saturday, January 26, 2008

Ausencia

I miss her when I want to tell her how much I miss her.


Today I could finally cry.


Friday, January 25, 2008

Epilogue: Your comments and messages

I'm opening the blog as the place for all of you to write. Please feel free to enter your notes and comments here, it is probably the best way to celebrate Claudia with all. If you have already sent something, consider copying it again here.

It will be a beautiful collection for the family to keep in the future.

Thursday, January 24, 2008

Last Breath

Claudia took her last breath at 12:30 pm today. She waited until she saw everyone, said goodbye, and then slept all morning while I held her hand and talked to her, listening to Bach cello suites. I've loved her for 15 years, now she can go on her way. She stays in my heart forever.

She is now in peace, and we can celebrate her life. We will have a memorial service at Eastshore Unitarian Church in Bellevue on Saturday February 2, 2008 at 2 pm. Please do not send flowers but make a donation in her honor to Harmony Hill Cancer Retreat Center, or to Eastshore Unitarian Social Justice Ctee.

Photo: These are the prayer flags from her last birthday, still hanging in our yard. When I took this picture I knew it was the one I wanted to use for this message. I did not know when I would write it. Here it is, now.

Wednesday, January 23, 2008

Hanging on

We're all hanging on, each one in different ways. Each one with our own script. Claudia is the one dying, and she is following her own script. She hangs on. The rest of us sit by her side. We hang on.

The nausea / anxiety / confusion episodes are more frequent, stronger each time. So is the pain and the dehydration. These are all normal in the process of dying. So medications are going up, and we try to adjust the hydration, IV nutrition, rest. IV nutrition seems to be doing more harm than good, so it was cut by half; she was not ready to stop it altogether. That is likely the next step; she will be ready when she is ready.

My parents left today, Camila and Patricia leave tomorrow. Each one with a hurt in the heart. We're happy have peace and quiet for a bit, but we hate to see Camila leave. She hates to leave too, but she has her graduation school trip to Isla Gorgona next week, and she wants to go; it is a remote island off the Pacific coast of Colombia, and she will be out of reach for a few days; Claudia does not want to die during this trip. Camila also wants to come back when it is time for Claudia to die; to be precise, she wants to come just before she dies. This is what we thought she was doing 10 days ago, but things unfolded differently. How can we know? Nobody knows. The mystery of death.

I held a baby for a long while on Sunday, marveling at the miracle of life, its mystery, its beauty. Holding life in the beginning, so fragile; holding life in the end, so fragile too. Life itself, so fragile all around, and we live day to day with the illusion that we are in control. When a baby's birth is past its due date, the birth is induced. With death, we wait, and we hang on.

So we hang on. Slowly, surely, lovingly, we hang on. We each do what we can. Many of you send messages and cards, I read them or talk about them to Claudia when she is more alert and there is quiet. We feel very fortunate, very loved and supported, both locally and around the world. This is a very unique experience for all of us, to hang on, together.

Saturday, January 19, 2008

Wait and keep company

Strange week, waiting for the inevitable, hoping it doesn't happen, at least not yet. People coming in and out, people calling, people sending cards and flowers and hugs, and Claudia living through it all. Each day with a bit less energy, throwing up a bit more, a bit more sleepy. But each day still here with us. What a gift!

We went on a field trip to visit Evergreen Hospice, all together, just to check it out, to have a visual in mind of what lies ahead. A very emotional visit. We looked around the rooms, the family kitchen, the living room, the rose garden, the playground. A nice place, a place to die in peace. Made me think of birthing homes, but for the birth on the other side of the river, at the other end of life.

The kids and I we went to the Seattle Symphony children's program this morning. It was exciting for them to hear the orchestra play Star Wars and Harry Potter themes, with the conductor stopping to explain how music can produce emotions, places, things... Then we walked along the piers in Seattle and had lunch by the water, talking about how we will miss mom, and how we will stick together to get through our grief. We're getting ready, but we will never be ready.

Wednesday, January 16, 2008

Today is when she would have died


The accounts of her death have been exaggerated. I told you there was no guarantee that things would go according to plan. And we're so happy she did not follow the path, yet again! This seems to be a habit of hers, not doing things by the book, setting her own rules, walking her own path.

Today is the day Claudia would have died, based on where we were ten days ago: she was halfway gone already, in such bad shape that we decided to move to hospice care, and keep her with IV hydration and nutrition for a few days, waiting for family to arrive. Over the weekend we would have stopped IVs, and she would have lasted a few more days, till Wednesday most likely.

Well, here we are, it is Wednesday, and she has no plans to die just yet. Although her energy is slowly declining, and she is slowly dehydrating, she is up and about, making the best of the time she has with us. Having her sister here has been a special gift, as well as Camila and my parents. She has been seeing a few friends, giving them a piece of jewelry, a piece of clothing, a hug here, a tear there. Talking to some others on the phone, despite the low energy. It is most unique to be able to wrap up in form, say good bye in full awareness, enjoy every hour as if it was the last one.

She is not eating, but drinking lots of water, juice, soup, and some dark beer. All of it goes straight through her G-tube. She sleeps a few naps, and by the end of the afternoon she is exhausted, her muscles shaking and trembling, her nausea picking up, and her delirious stories and characters showing up; we humor her when she mixes this reality and the other, and she goes to sleep in peace, connected to the IV nutrition.

Life goes on, we wait, and enjoy every minute with her smile.

Monday, January 14, 2008

Celebrate

Sunday was sunny, an unlikely event for this part of the world at this time of the year. Claudia was weak and tired, but she went to the soccer game and cheered as if it was the world cup.

Today it is cold and rainy, the way you would expect it to be around here. Claudia is doing OK, black beer is still having a good effect on her. Till when? For the rest of her life!

I feel evil and mean, managing her time and limiting her visitors, screening her phone calls, but I know you all understand. She can be loved to death, literally.

Saturday, January 12, 2008

All is stable

Claudia is having a great weekend, with good energy and high spirits. She is walking again, after many weeks of not walking. She has been talking with friends, some of them coming from out of town; she has been resting, seeing the hospice nurses and social workers. The nurse says: "whatever you're giving her, keep on doing it; she is looking great!" The trick is black beer, which she's been happily drinking every now and then.

The boys were thrilled that she made it to Mateo's last indoor soccer game last night (the first one she is able to attend in the whole season) and the second half of Tomas' tournament soccer game today. They both lost, but she won just by being there.

The rest of the family arrives tonight. Tomorrow's breakfast should be a feast. Join us with your own feast, wherever you are. Thank you all for the messages you have been sending. They come from the heart, they go straight to the heart.

The Internet at home is very slow, as if in solidarity with Claudia's slowing down. Email, blog, phones, all is slow. Posting this note takes forever, and I don't have too much to say here just now anyway. Time for pain meds, and to switch IVs. Go to airport later. Eat chocolate. Breathe.

Thursday, January 10, 2008

Cleaning up

After a quiet family day at home it is amazing to see Claudia getting up and walking about. She is going through her stuff, we're having good, long conversations, and she is slowly dehydrating again, despite IV fluids and nutrition. Pain is in control, she is doing well, and we know this the path she is on.

It is almost surreal to be talking with her about how she would like things done, what to do with her stuff, how to handle hospice care, what she imagines for her funeral, how to prepare a memorial service... we have no experience with this, let alone here, this is the first time we die. The people at the hospice are very kind, understanding, informative. The web, of course, has more than you could ever imagine or need.

Each child has a different reaction. Tomas cries in silence. Mateo is expresses himself most openly: "It is not fair, I would only have had a mom for ten years"... "I'm not ready for her to die". Nobody is. I write. You read.

Someone called this morning and begged me to put something on the blog. "I'm addicted, I keep on checking, many times a day". We all deal with this the best we can. I write, you read. Some of you write back. Thank you all for being with us.

It is nice to spend time Claudia in peace and quiet, despite several hours of paperwork and forms yesterday afternoon (admitted to hospice, home care, hospital bed, new IV supplies, insurance, the list goes on and on). She may not be able to see everybody who wants to see her, but that is OK. We get all your energies and hugs, from wherever you are.

Her sister did get a visa, but can only pick it up on Friday, so our creative travel agent got her a new booking for Saturday; she will arrive at the same time with my parents. Camila is flying now, arrives tonight.

"What if in the end I don't die?", asks Claudia. It would be a good practical joke for Inocentes, our April Fools day. Sorry, we cannot guarantee things will go according to plan. We write a script in retrospect, a documentary of things past. Mateo and I laughed when we realized we could be in a car accident and die this morning, beating everybody else to it, even dying before mom.

Several people have been commenting that it all seems so sudden, but then they have gone back and read the blog again. No, it is not sudden, we've had plenty of notice. But we are never ready. We've celebrated every possible accomplishment these past two years; we've lived every dark cavern too, fully aware of where we are and what we are living. Strange feeling, being here today does not come as a surprise to me. I've written about death before (I search for "death" in the blog and it gives these fifteen results). The only difference is now we're there. And then, we're not even there yet. Tomorrow feels so far away. Live in the present. Breathe normal.

I fold the laundry and put piles for each one in the family. Claudia goes through her drawers and picks things she wants to give some of her friends. Here's a toast to life, pure and simple.

Wednesday, January 09, 2008

Mateo's sax

Mateo got a new sax, a late Christmas gift that finally arrived.

I wonder if the boys would play something at their mom's memorial service.

Tuesday, January 08, 2008

Wednesday is a Family day at home

We're set up at home, after an intense afternoon in which Claudia had more energy than we had seen in the last few days added up together. She drank her juices and half a beer, toasted with friends, cried and laughed and hugged a lot. Many people came by, there were a thousand calls on all possible phones, and while it was comforting to feel the love and care of so many people around us, it was a bit too much, I feel. It was a beautiful whirlwind, but we don't want to do a repeat of it tomorrow: it may kill us.

We will rather have a quiet family day Wednesday, to give us a chance to catch up with our energies with Tomas and Mateo. Hospice home care will be coming as well, and that is about all the visitors we will want for now. Thursday we will take it easy and open the shop again for very short visits and few at a time, if things go well. I know you all understand.

With a stop at home

Yesterday we did not move to Evergreen Hospice, and we were planning to go today. But a new and better change of plans became possible: Claudia is coming home, hopefully for a few days, before going to hospice as inpatient.

She will start receiving hospice care at home. The plan is to continue with the fluids and finish off some antibiotics to fight an infection, and wait for people to come: Camila is coming back Thursday, my parents come Saturday. Claudia's sister is trying to get a US visa, hopefully she will be able to come too. We're buying time, but it may be very short term credit, not moe than a few days. Nonetheless, it is amazing to have all the medical and hospice care bend over backward to acommodate her, including putting a hospital bed at home to keep her comfortable. It is amazing to have all the loving community around us, supporting us in so many ways, big and small: from getting tea for a fleeting craving of Claudia's, to sharing sick leave with me so I can take time off work the next few weeks. There are not enough languages in the world to say thank you.

When the time is near, she will move to Evergreen, where she will be able to let go. We will be able to let go. We talk with the boys about how the body dies and goes back to the earth, and the spirit keeps on living in the hearts of those who love you. Life is so fragile, and so full of strength. Death is so strangely simple, and yet so complex.

Sunday, January 06, 2008

Moving to Evergreen Hospice

Today is the day the Kings arrive to visit the newborn God in the Christian tradition. It is celebrated in different ways around Latin America and Spain, and in some places it is the day in which Christmas gifts are exchanged (the Kings brought gifts, of course). We're having a special meal with special gifts, honoring the difficulties we've been going through this week of few words on the blog.

Claudia was not recovering well with the IV nutrition at home; quite the contrary, she was deteriorating quickly. By Friday she was in a lot of pain, not sleeping, not holding anything in her stomach, and she decided she wanted to go back to the hospital. Her doctor confirmed cancer is in fact progressing quickly in her abdomen, and there is no use trying to battle it with further surgery or chemo. We have to face the fact she is as the end of her rope.

She had the option of staying in the hospital for IV hydration and pain killers, or coming home to get them here, and she chose to stay in the hospital. By evening she was feeling better: fluids and narcotics do help. When I took Camila to the airport on Saturday morning Claudia was looking great. But her condition is not stable: she goes in and out of consciousness, in and out of fever and delirium, in and out of sleep. You just have to be lucky to make contact at the right time. Today when I returned with the boys we found her doing great, drinking lots of juice and eating fruits, having fun with a crowd of visitors. Within an hour she was back in the tunnels of her underworld.

We will move her to Evergreen Hospice tomorrow, and she will receive good care to make her as comfortable as possible. She may want to come back home in a few days, if things go well, and she can continue to receive hospice care here at home. We have many friends who have suggested this over the past few weeks, and many who have shared stories of how hospice care helped them care for loved ones during processes of terminal illness. We are now there.

Claudia is slowly coming to grips with this reality. She wishes she was stronger, to continue fighting. She says she is at peace, but just wants some more time, selfishly, to be with us longer. Today, the way she is, she would rather not be at home. We will be with her, wherever she prefers to stay.

Life with her has been the gift of the Kings.

Saturday, January 05, 2008

Hydration and pain killer

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Friday, January 04, 2008

Admitted to the hospital again



Thursday, January 03, 2008

Home Infusion

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Tuesday, January 01, 2008

Home infusion station

Sunday, December 30, 2007

Feliz año 2008



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Claudia feeds at home


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Tomas, Camila & Mateo




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Friday, December 28, 2007

Inocentes 2008

Dec 28 is the equivalent of April Fools day in many South American countries... practical jokes and pranks that seem out of place here, but we still have fun. My brother convinced my mom he had lost his car keys and almost had her drive to downtown Ottawa to pick up a spare set. Claudia wanted me to say I had accepted a new job in Rome and we were moving in a month.

I could not come up with any good ones. I wish Claudia was home. Mateo had a meltdown last night, wishing she was back home. Tomas is sick today, lying on the couch, wishing she was home. Camila had a flat tire on her bike; she changed it, wishing Claudia was home.

Our life seems to be full of practical jokes, so we did not have to create new ones: Claudia had an endoscopy last night, and they could not see any tumor blockage in the stomach or upper intestine. So she had a contrast study to look for the obstruction further down, and the results are inconclusive... She may come home tonight, with IV nutrition through a home service. Special backpack for a special girl.

Amazing things that happen, in the edge between IV and nutrition: Friends bring us meals and we have healthy food for the family during this upside down period. Other people donate blood and Claudia can get three units of blood transfusion... Isn't it amazing that meals and blood can be shared with one another?

Wednesday, December 26, 2007

Back in the hospital

We managed to postpone the inevitable till today, but no longer.

Claudia has a new bowel obstruction, this time closer to or in her stomach, and she was admitted back into the hospital today after five days of not eating and throwing up everything she put in her mouth. She was dehydrated despite all the fluids she tried to drink, and has lost another 14 pounds in 8 days. She feels so tiny and brittle! We hugged for a long time in bed this morning, before finally leaving for the hospital. How long this time?

We've had a place set at the table for her these past few days, while we've eaten lots of special holiday foods (many of them brought by generous friends, thank you again!). Her place at the table has stayed untouched, a sad symbol of her diet.

The past couple of days I've taken cough syrup and relished on its bittersweet taste, its soothing effect on the throat and lungs. It does not taste bad, and it works. I look at Claudia's night table, covered with medications, lotions and medical supplies; they taste horrible and don't seem to work. The worse is chemo. She plans to go back sooner than Jan 8, if she has the strength. But unlike my cough syrup, her chemo knocks her out, gives her bad side effects, and does not seem to do any good!

Well, we did have a family Christmas, with board games (when else would you play Risk and Monopoly on consecutive days?), good food (which Claudia could not even try), silly and interesting gifts, and lots of music: the kids got a Beatles Anthology book, and each one is happy playing their favorites on the piano: "It is fun to play songs everybody knows"... there go Bach and Mozart, of course.

The nurses at the hospital were all smiles and happy to see us... well, happy to see us, but not happy that she was coming back with a new bowel obstruction. We know the routines, where to find stuff, how to ask for stuff... an expertise we'd rather not have. She had a few X-rays and the technician greeted her by first name... a familiarity that is hard to be proud of. After a few bags of IV hydration Claudia was feeling a lot stronger, and waiting for an endoscopy to try to see (literally) what is going on.

Camila stayed with her overnight, a girls' night out; the boys came home with me to have dinner and watch a movie, a boys' night out. The full moon is just beautiful, and there are some stars in the sky. The universe has a night out, too.

PD: I'm curious about what advertisements the ads server would select based on the content of this blog... so I added a widget on the right. Besides, who knows, it may even pay some cash to help cover the medical bills!

Monday, December 24, 2007

Christmas Concert

We had some good music and talent at our party Friday, including an impromptu quartet of Christmas carols. Comparing to the October Happy Birthday ensemble, I was right in saying then that it could only get better. The carols actually sounded like carols!

Claudia could not participate in the party, though, she was feeling horrible and throwing up all the time, so she stayed in bed... She has been throwing up constantly since Friday, not holding any food and barely any liquid. It is hard to imagine her gaining weight like this. We talk about going to the doctor today, but we decide it is not worth spending Christmas at the hospital. Rather stay here and celebrate as a family, even though she won't eat or drink anything (or will return whatever she attempts to take in), and we go see the doctor on Dec 26 to get a "boxing day" special of IV nutrtition.

The boys have been wondering what to write on letters to Santa, or its Colombian version of Niño Dios. I tell them this may be the last year niño dios brings something to our home, as it is the last year in which there is anybody under 10 in the house. Besides, they've been recently getting some special gifts on account of hospital stays (a Wii console that I ended up buying on ebay, they are difficult to find in stores, and their cell phones, of course), and I've been playfully threatening them it is a Buy Nothing Christmas after all. But don't you worry, there have been some family gifts under the tree, and we have been making the season's special, buñuelos, which is the only reason we keep a deep fryer in the garage.

This may be our last Christmas together. It is hard not to think of this, it is hard to live centered on the present. Today is Christmas eve 2007. That is all there is, that is all we have. All else is too fragile, too uncertain, too remote. Breathe normal.

Thursday, December 20, 2007

The week before Christmas


It has been a strange week. With less visits to the hospital than last week, but more revealing: Monday Claudia had some fever to complement the nausea, so we went to the doctor on Tuesday. The fever is no big concern now, she was even taken off the antibiotics; the nausea, on the other hand, is most likely caused by tumor growing on or against the stomach, and there is not much to do about it. Maybe chemo will help shrink it, she will go back to chemo on Jan 8. Maybe not.

We ask why such tumor would not have been removed during surgery, if they were just there. Ovarian cancer is like frost, all over the place, but there is no snowman. So nothing really distinct that can be cut out.

A couple of weeks ago, while still in the hospital, we had talked about longer term plans. Claudia wants to make it to Camila's high school graduation in June 08. She may make it till then, Doctor says, but she may be on IV nutrition, unable to eat. I pointed out this was not part of regular airlines menu options... With this stomach thing going on this week, that scenario becomes all the more real.

We are having a small party tomorrow Friday: our traditioinal "Como sera ese Show" Christmas party, with potluck dinner and potluck show, which we have not been able to host the past two years here in Bellevue. But friends in Ottawa remember it. Every reason to celebrate.

In the middle of all this, I managed to finish our year-end letter and collage, another tradition that has been going on for 15 years now. One day I will put all those past letters and collages together online, for now I just hang them on the wall this season. Here is this year's version:

Dear friends

The days get shorter and the year feels longer. But the year is almost over, a year in which we celebrated and grieved the joys and the pains of being alive. The loving and caring community around us in the Seattle area has helped carry our load and makes us feel more at home here than anywhere else ever before. This Christmas we celebrate with a new sense of belonging to this place, to this community.

Claudia kept up with her battle against cancer, and we battled by her side, one day after the other. In the spring her kidneys suffered; in the summer she took a pause from chemo, and we took a memorable family trip to Guatemala. In the fall her bowel suffered, and she spent a long month in the hospital. She continues to show us how to battle, and live one day at a time.

Camila started her last year of high school, Mateo his last year of elementary, and Tomas his first year of middle school. It seems we are all in transitions, and no, she does not know where or what she will study in college. But she did learn to drive. The boys have been busy with soccer & music, and school keeps them all busy and focused.

Ricardo started a new job with the University of Washington in November, and keeps up with the blog to share with all of you the daily news and struggles of the family around Claudia. The blog has become a unique communication channel, with much feedback and conversation it generates, and almost taking a life of its own: do keep writing back to us!

Best wishes for this Christmas season, and for a great year 2008.


Ricardo, Claudia, Camila, Tomás, Mateo


Saturday, December 15, 2007

Final game of the season: for Claudia

Today was the last game of Tomas' soccer season, and Claudia made it all the way to Port Orchard to watch it. It was cold and rainy, and she watched from the car parked by the field. The whole team lined up in front of her before the game and yelled: "Claudia, this one is for you!". Then they went and won 3-1. She slowly walked out to the field at the end of the game for a group picture.

This was her first outing since the end of October, when we watched another game and she went to the hospital for a test... So much has happened since that we celebrated with a special treat of a late lunch at a restaurant. It has been quite a month and a half, with the profound experiences of death and community helping to bring us closer together and more fully appreciate the meaning of life.

"When you were born you cried, and the world rejoiced... live your life so when you die the world cries and you rejoice", we sang not too long ago.

Claudia, this one is for you. Thank you, team Velocity.

Thursday, December 13, 2007

To Malaysia and back

The parking lot ticket read 4 days and 18 hours. Half of it was traveling, and the other half was there. Malaysia is a strange mixture of China and India, though I did not really get to see much. The 1 1/2 day workshop for my research program went well, and the other half day was a great opportunity to catch up with many friends from around the world who were there for the GKP conference. I have been at every one, plus the WSIS conferences in between, over the last 10 years. I loved the opportunity to be there again and confirm how much has changed over this decade in the field of ICTs for development.

The return trip was longer than the departure, not only because it was against the time (I left Taiwan later than I arrived in Seattle, after 11 hours of flight) but because I learned just before leaving the hotel that Claudia was again in the hospital. She had increasing nausea and kidney pain, and ended up being admitted Tuesday night to give her IV antibiotics and hydration, and to keep her under closer observation. When we finally talked on the phone, Camila was looking after Tomas and Mateo at home, and Claudia was in the hospital.

I wondered whether I should have gone away, if Claudia was OK, if the kids were OK, during the many hours of return travel. When I arrived home they were all watching a movie, Claudia was out of the hospital, and everything was OK. She continues throwing up everything she eats, so she is going back to the doctor today, and she will have the stent to her kidney replaced tomorrow. The merry-go-round continues.

Camila went to do her driving test but it was the wrong day; then she returned and the car's insurance was expired. Today she tries for the third time. La tercera es la vencida, we say in Spanish. This time she should be able to make it. The plan is she will pick up Mateo at school, brand new license in hand.

How many things fit in four days? How many in four paragraphs?

Thursday, December 06, 2007

Hitting bottom and bouncing back

Claudia is finally regaining some strength. After losing 15 pounds, losing her appetite, and losing her enthusiasm to keep fighting, she hit bottom yesterday and started to bounce back. She was hungry for fish, so I bought salmon on the way back from Mateo's clarinet lesson. Good reason to celebrate.

She had a good, long conversation with the oncologist yesterday, talking about return to chemo, quality of life, family life... Dr wants her back on chemo as soon as possible, so they will do a PET scan Friday to assess how things are doing, and then decide whether she can wait till January, after the holidays. The tension between prolonging life and quality of life, lived in very concrete decisions, not as a hypothetical question.

Here are some other tensions we have been living, tensions that make me think of this picture I took years ago, around 1980: the monumental task of getting things done and staying in balance:
  • The tension between organizing a schedule for visits, to make sure there is someone every now and then with her, and leaving it open to friends who want to come even when they are not on the calendar. Keep on coming.
  • The tension between focusing on the immediate communications and logistics about what is going on locally to help Claudia, and including something for all of you friends around the world who cannot sign up on the calendar for a 2:00 pm visit, but still want to know what is going on. Keep on writing.
  • The tension between working with the kids to be more self-reliant and play a more active role with chores at home, and offering them extra patience and loving care during this time of difficulty, a difficulty they have a hard time articulating or even understanding. Keep on loving.
  • The tension between work and home, between dad and husband, husband and caregiver, caregiver and friend. Keep on trying.
  • The tension between writing long enough, short enough, clear enough, enough. Keep on writing.
Claudia had the gastric tube removed today. They just cut the stitches and pulled it out. Claudia is very happy, she hated the stupid hose hanging out. We wonder how come the soup does not leak out.

I may be developing an ulcer again. Apologies for the bad breath. At least we know there can be a hole and soup does not leak out.

Sunday, December 02, 2007

Shared Calendar for local support

We are using this shared calendar to help us manage company to help Claudia over the next couple of weeks, and other support tasks (people who have signed up to share a meal, or other help with transportation for doctors visits, for the boys, etc). It is starting to be populated, and will give you all a sense of where there is a slot you can help with...

The calendar refreshes automatically when you open the blog again, so it is always up to date (you can also refresh the page if you are unsure). You can also navigate to future weeks, or change to a month view or an agenda view which lists every upcoming activity and whether there is someone doing it... Pretty cool!

We cannot really automate the entries to let each person enter changes, it would get too complicated, but you can send a note asking to be added to a particular activity and time slot to shareclaudiashealth@gmail.com; we have a small team helping to organize this process. Helping manage the help is a great help to us, thanks to each one of you.

Saturday, December 01, 2007

Snow

Today is the first day of December, the last month of the year. It snowed this morning, about an inch on the grass, and the boys went out to play and celebrate. Unlike Ottawa, snow is a rare occurrence here. Strange to see them playing basketball, in shorts, on the snow. I guess it is the joy of being 10 years old. Claudia sat inside by the window and they threw snowballs at her, making her laugh and not touching her.

We've had a slow week, with Claudia slowly but steadily recovering. Many friends visited during the week, brought her love and food and flowers, and gave her a helping hand to walk herself out of the pit she was in. She is doing a lot better, but has a long way to go still. We're talking about return to chemo, and I'm suggesting she waits till the new year, when she will be stronger, rather than start again this week. It is a hard choice, and many tears have flowed as we talk about it.

I had an intense week as well, leading a workshop with researchers from various Latin American countries who came to Seattle, instead of me going to Costa Rica as was the original plan. My new job is to lead a research program on barriers to equitable public access to information & communication technologies in 25 countries around the world. It is a topic I have been passionate about for over a decade, and it is great fun to be part of this field of research again. The next workshop in a few days in Kuala Lumpur, Malaysia, will bring together the remaining teams from other parts of the world, after which we will have a strong and shared foundation for this ambitious research program.

Research design and group facilitation are two things I really love, so I end the week well energized. Thanks to all who helped keep an eye on Claudia during this week, so I could focus on my own stuff. We're looking for an easy way to help organize a shared calendar to help keep Claudia company while I go to Malaysia next week. Although Camila is here, she will still need some help... I will put a link to the calendar as soon as we figure out how to make it work. One would think that given the work I'm involved in it would be easy, but I'm no tech wiz either. Taking pictures and putting them on the blog is about as fancy as I can get.

Sunday, November 25, 2007

She's hooooome!


Claudia is home today.
When we arrived we cried.
We ate late lunch,
she had a craving for lentils and rice.

She cleaned her poopy bag
and cried some more.
"how will you want me now?"
"I love you, not the bag."
Then she slept.

Friends were outside helping with yard work.
Others called or visited the hospital,
but the room was empty.

After 28 days in the hospital
and 20 posts on the blog
We are home.

Saturday, November 24, 2007

Still here

Saturday. Still at the hospital. Waiting.

Claudia is weak, anemic, annoyed. Slight fever last night, low blood counts. Do another CT scan. Maybe more blood transfusion. Wait till tomorrow.

Worse than staying in the hospital is going home and having to come back to the emergency room. In an ambulance.

The boys had a sleepover with friends last night; I considered coming for a sleepover at the hospital, but rather stayed home alone finishing some work, and came to see her early, with fresh croissants and cinnamon rolls. She had an accident during the night, the ostomy bag leaked and it became a shitty mess. Things we have to learn about, anticipate, live with. At the hospital she had the nurse. At home it will be me.

Yesterday it was Buy Nothing Day. A counter-movement to the craziness of holiday shopping that kicks off the day after Thanksgiving. Stores live for that day. We make a point of not even buying milk. Then comes Buy Nothing Christmas. Take back the season.

Thursday, November 22, 2007

Fever again

Bad night. Fever came back last night.
She's back on antibiotics.
She won't be back home just yet.

Wednesday, November 21, 2007

Some things to give thanks for

The day before Thanksgiving. Claudia has a lot of visitors at the hospital. She is happy, and exhausted. She has not had any fever since last night.

In the evening she takes a shower. The first one in 23 days. As I help her in and out, I try to imagine what warm running water must be feeling like on her skin. I anticipate my next shower, and the new awareness of the freshness of warm water and soap, daily taken for granted until today, renewed on my own skin. I imagine the readers of this blog, some in the neighborhood, some in North America, some in different countries around the world; some visiting it online, some getting emailed updates; some long ago friends, some recent friends, some friends of friends; all loving and caring readers who wish Claudia well, who wish us well... I imagine the many showers you will all be taking tonight, tomorrow, the day you read this note, the day after that. And the feeling of fresh warm water on the skin, and how it must have felt for Claudia today, after 23 days of sponge baths in the hospital. And how you will each take notice of the water next time you shower, and think of Claudia today.

This is Mateo taking a shower by the beach... a different kind of shower from what Claudia had. I give thanks for fresh warm water, on your body, on mine, on Claudia's.



---

She then had the drain tube pulled out, and the staples removed. Not stitches, they use staples now. She had 32 of them down her belly, and they were pulled out, one by one. Many were painfully attached to the growing skin, the miracle of healing, cells looking for each other and bonding and renewing, even over a metal staple. The incision is healing well, long railroad scar, now smooth and without staples. One bag collecting stools from the intestine on one side, one hose coming out of the stomach on the other.

We talked about when each of us has had stitches: Mateo remembered his on the forehead, Tomas his knee, I on my back. We thought of Camila and her leg this summer. Claudia and her staples from the first surgery two weeks ago. Her first surgery two years ago.

I give thanks for all stitches and staples and drain tubes that finally come out, and let the body keep on working on its miracle of healing. The mystery of healing. The mystery of life renewing itself.

Claudia may go back to chemo next week. But first she needs to get out of the hospital.

Tomorrow is Thanksgiving. Lots of things to give thanks for. Thanks for giving thanks with us.

Monday, November 19, 2007

Three weeks and counting: in the hospital a bit longer

Today it is three weeks since Claudia was admitted to the hospital. Three weeks, two surgeries, seven antibiotics, five CT scans, 10 cultures, four blood transfusions, a dozen nurses, five medical specialists, and a partridge on a pear tree. She is still in the hospital, still having fevers, and they cannot find what is causing them or where. All cultures come back negative: blood cultures, drawn from different parts of the body; urine and stool cultures; abdominal fluid cultures. But each day the fever pushes up another bit, today reaching 40.

So doctors decided this morning to stop all antibiotics for two days, to give the infection a chance to actually grow in a new culture, if there is in fact an infection, and to find out which antibiotic would really work. The antibiotics she has been getting are enough to inhibit culture growth, but not enough to kick it out completely, it seems.

It is risky to get her off antibiotics for two days, so she will have to stay in close observation at the hospital, and then we will see. So there goes another week. We're making contingency plans for next week, when I was supposed to go on a business trip to Costa Rica. It is possible I don't go after all.

This week is Thanksgiving week in the US. 13 years ago we celebrated our first Thanksgiving together in North America, at my PhD advisor's home in Ithaca, NY. This picture is from that day: it was Claudia's first encounter with snow, her first Thanksgiving dinner (Shirley prepared the traditional turkey and all the dressings), and the first time she saw me drink a bit too much wine...

Thanksgiving is an important family celebration, and everything shuts down starting Thursday, as it would on a First of January or Good Friday in Latin America. Let's hope the hospital does not shut down, since it is likely we will be celebrating Thanksgiving there.

I'm not sure if we can bring wine to the hospital.

Saturday, November 17, 2007

Fever looming, still at the hospital

Claudia is feeling a lot better, and she is recovering well from surgery. But she has been having an "almost fever" each day, around 38.4, and they consider fever a 38.5 and above. So the doctors decided not to risk it and have her stay at the hospital for the weekend, to see if it is a fever that is coming or that is going away. If it is going away she may be home Monday or Tuesday. If it is coming there are several options to consider. We will see.

I gave her a mango, with the top half peeled off and the bottom half with the skin, so she could hold it and enjoy it... the nurse came in, watched closely, and had an "aha" moment: "So that is how you eat a mango!" she said, "I had always wondered how to eat one without getting messy". I told her it was far better sitting on a rock in the middle of a river, getting all messy, and then washing up with fresh water. We just need a river now; the one in the photo was in Costa Rica in 2000.

This week we got phones for the boys. Mostly for my peace of mind, that I can reach them with any change of plans, and that they can reach me with any surprising issue, like missing the bus. All this is, of course, secondary for them: they are thrilled to have a cool toy that they can use to text their friends with. Way too cool! There are some benefits to all the mess we're in, after all.

Thursday, November 15, 2007

Slow recovery

Today was a painful day; they switched from IV painkiller to pills, and the dose was off: Claudia had a very painful afternoon, till they finally managed to get the right dose and she could come out of it. By the time I saw her in the evening she was doing a lot better, complaining to the doctor about the nurse's oversight about the dosage... and complaining about the food. The doctor considers complaining about hospital food a symptom of good health.

This was the surgeon doctor. For him, Claudia is ready to go home after the surgery. But he defers to the Infection doctor to make sure he is OK with the antibiotics cocktail and dosage, and to the Cancer doctor as primary care doctor to make sure she is OK with pain control before coming home. So who knows, she may be back home this weekend... Hooray!

Tomas had a wet soccer practice today, under the rain, after missing the bus from school and calling for me to pick him up. Traffic in the rain was not pretty. As if it had never rained in this town. I'm tired.

Tuesday, November 13, 2007

Peritonitis and washing the abdominal cavity

The doctor called at midnight, after finishing surgery: all went well, no surprises, abdominal cavity is now spanking clean. Then Claudia called at 1 am: "I'm awake now, and feeling so relieved. Are you coming?" And again at 5 am: "are you coming now?"

This was the end of the long night. She had been pushing the doctors to DO SOMETHING, not just wait to see if there would be any complications. The fever was returning, and it was going to be two weeks since she was admitted. Well, they decided to DO SOMETHING, judging she had developed peritonitis: they would open her up again and wash all the abdominal cavity again with saline solution to disinfect it, as an extreme measure to prevent the infection from spreading to the bloodstream and causing sepsis.

It went well, and she seems to be recovering well, with much relief.

We had stayed in the hospital with her till she went to pre-op, and then stayed there with her some more with the kids. It started getting late, so we left: the doctor was still in the OR with someone else, she would go in next. She ended up going in a lot later, and finished at midnight. Early this morning Camila and I dropped by, on the way to the airport, to find her in great shape. Camila took off with a nice image of smiling Claudia, see you in a month.

The rest of the day went on too slowly for her, between sleep and pain medication; too slowly for the boys, at school; too slowly for Camila, flying to Houston and then Bogota; too fast for me, with many things to get going in my new job.

I know many have been checking the blog during the day, too slow a day, looking for news. Too slow, too fast. Life goes by in a heartbeat.

Monday, November 12, 2007

Monday and new surgery

After a slow day of waiting things started to come together mid afternoon. Claudia's infection is not giving in, and rather than wait some more the various doctors concluded the best option was to open, explore and clean up. She should be going into the operating room in about an hour. She is calm and confident this is the best thing to do. We go see her out with the kids. Camila leaves tomorrow early. She came just before the first one, and leaves just after this second one. Talk about timing.

Sunday, November 11, 2007

Sunday at Marymoor

This is Camila's and Samson's favorite place: a park where dogs are off-leash and they run around freely; they don't fight, they don't bark, and their owners pick up after them... I know it is hard to imagine such a thing in many places around the world.

Claudia did not have a fever last night; the cocktail of antibiotics, about six of them, seems to be working. They drew some liquid from the abdomen and are testing for peritoneal infection. She is feeling better this morning.

Saturday, November 10, 2007

Recovery stalled?

I read the postings of this week and they feel a lot more positive about Claudia's recovery than it has actually been. While the first day after surgery she was doing great, "200% better", this pace slowed down, stalled, and actually declined by the end of the week: she's been having high fevers, but the doctors cannot find what is causing them: no indication of infection in the lungs, on the port, in the incision, in the bowel... they have drawn blood from different places, they've done cultures, they've taken X-rays... still nothing. Today she is having a CT scan, finally the CT scan that could not be done before surgery, to try to "see" what is going on.

She had walked on Monday and Tuesday, but no more... high fevers have had her delirious, with nurses running around with ice packs and Tylenol. She had some visitors on Wednesday and Thursday, but she is increasingly weak and frustrated and may not want to see anybody now. She had eaten some solid food on Thursday, but no more by Friday, when she was back on a diet of "sips and chips", that is, small sips of water and chips of ice, and back on IV nutrition.

So we hurry up and wait. I guess this is a technique we are now mastering well. Tomas is at his soccer game in Olympia this morning, Mateo has his last game of the season this afternoon. Yesterday we went Husky Shopping with the three kids, they each got to choose one Husky item a the University Bookstore. The UW sports teams are all "Huskies", and we are now officially "Husky Fans". So they each have a sweatshirt or t-shirt to show for it now.

Friday, November 09, 2007

More change: new job

Two years ago today Claudia had an annual checkup that found unusual cells in her PAP smear: the beginning of the battle against cancer. Today is also another important milestone, I can finally talk about another change that has been cooking over the last few days, as if having Claudia in the hospital was not enough. I'm changing jobs, joining the University of Washington Information School, to lead a worldwide research project on public access computing. I'm super excited about this change, and thrilled to be back in the world of research and communication technologies for development.

Here is what has been going around this morning, especially around friends and colleagues at work:

Three years ago I was traveling in Nepal when a head hunter contacted me about coming to Microsoft to manage Community Affairs grants in Latin America. I turned it down at first, but after Akhtar visited in Ottawa I agreed to come out to meet the team… this resulted in me accepting to come over, and we moved from Ottawa to the Seattle region.

After three years of adventures it is time for me to move on, and the friends, lessons and experiences of this period go with me. First and foremost, I found a warm and caring community in this region, and an amazing medical system to help care for my wife, Claudia, who was diagnosed with advanced ovarian cancer only a few months after we had arrived. She was given six months to live, two years ago. Her success during this time would not have been possible without her strength and will to live, without the support of the community that has come around us, or without the medical staff and facilities in this region.

My boys have been swimming, playing music and playing soccer during these three years, and one of their recent soccer games made me think of a metaphor to describe my own experience of this period: I feel like I was recruited to play soccer in this team, but the needs of the team are now a different sport, one that is not really in my league. Claudia’s battle against cancer has definitely put all else into perspective, and has taught me about focusing on what is really important. I will now be pursuing other opportunities, going back to where my passion is: I will be managing a large research project at the Information School of University of Washington.

Having lived and worked in many places over the last 20 years, it is surprising we have developed a very special attachment to the Pacific Northwest, and to the community of people we have built around us here. Who knows, maybe this was the reason I accepted to come here back then: not just for work, but for medical care and a sense of community. Claudia continues to battle against cancer, and we continue to build community and meaning in this new environment.

Thank you all for being with us during this time.

Ricardo

---

Claudia is doing better and may be back home from the hospital over the weekend.

Wednesday, November 07, 2007

On the road to recovery

Claudia is on the slow path of recovery. Yesterday she was doing great, with energy to do her short hikes to the end of the hall and even eating a bit of solid food. Today was not so good, though, she had a high fever and was tired and cranky. Camila spent the day with her, and patiently dealt with her changing moods while working on her school work.

Mateo returned to clarinet lessons: his teacher had been sick, with cancer it turns out. He is in chemo, weakened but eager to continue teaching. Mateo knows cancer is not contagious, and knows about chemo fatigue. I think they will do just fine.

Monday, November 05, 2007

First day, 200% progress

First day after surgery and Claudia has colors on her cheeks, strength in her voice, and drive to move forward. The doctor found her "200% better than last night", and I did too.

Two breakthroughs of the day:

  1. She took a walk, all the way to the end of the hall and back, holding hands with Camila. Less than 24 hours after surgery, this is quite an accomplishment. She can sit on a chair for a short while, and she could rinse her face with real water, no more wet facecloths.
  2. She was allowed to eat a full liquid diet, which means a lot more than the water and ice she has been taking: she can have juice, thick soup, ice cream, pudding, apple sauce... the gastric tube was clamped, she is actually eating for the first time in a week. She has been craving mango juice, tomorrow we will bring her some. Hooray!
She wants to be home by Friday. The doctor says it is possible. We are all for it!

Sunday, November 04, 2007

Out of Surgery

Claudia is now back in her room, sleeping in the dreams of pain killers after surgery. I don't want to call or write much, but I know many of you are waiting for news.

The doctor came to talk with me after about three hours of surgery. They found a badly obstructed and perforated colon, and patches of obstructed small intestine. Tumors growing into the bowel, and into lymph nodes behind. I don't know how much tumor was removed, if any, but a good chunk of large intestine and a piece of small one were removed. They connected the intestine direct to an outside bag (ileostomy), and placed a tube direct to the stomach (gastrostomy). This was the best they could do given what they found. She will stay in recovery for a few days, and should be able to go home after that.

Half dozed by the medications and in a lot of pain, Claudia lifted the sheets to look at her tummy. Seeing a hose coming out on one side of the incision, and a bag attached on the other
side, she said: "I guess I won't wear any more bikinis. I was thinking of getting one with pink stripes".

Many things going through my own head. I can't keep track of them all. Where is the emergency brake for this train? Where does this path lead to?

Breathe, live in the present.

The kids slept in this morning, and Mateo was preparing a special breakfast for Camila, a service of "Amanecer Rojo", the restaurant they run for special meals at home. He was dressed in his best blue shirt and with lots of gel in his hair, waiting for her to wake up to offer her the breakfast menu. I know I have lasagna later today, thanks to the support team that continues to ensure we get a meal at home every few days, a much appreciated help. It must be an extension of "Amanecer Rojo" restaurant.

Saturday, November 03, 2007

Camila is here, Surgery on Sunday

Camila arrived after a long day of travel, and visited Claudia in the hospital. She was feeling well, strong and awake, ready for surgery tomorrow at 7:30 am (in eight hours, as I write). It has been a long day, with slow breakfast at home with the boys, leaving them at their soccer games and afternoon with friends, and then going to see Claudia at the hospital. She was more awake than she has been the whole week, and feels relieved that there is finally a decision: Dr P. will operate in the morning, without the results of a CT scan to go by, but going in to see what she finds and do what she can. May her years of training and experience serve her well, and may her hands do exactly what they need to do.

We're all happy to have Camila home. All our love goes to Claudia as she goes into this path.

Friday, November 02, 2007

Promotion out of ICU

Claudia felt a lot better today, despite congested lungs and incipient pneumonia, so at the end of the day she was discharged from the intensive care unit and went back to the regular oncology ward. It seems she is determined to try out the different kinds of rooms they have at Overlake Hospital, before trying the operating room.

She is spending much time sleeping, even while being awake, but she humors the doctors and the nurses, so they take good care of her. She is receiving IV nutrition, and still has a tube down her nose to drain the stomach, but she was allowed a diet of clear liquid: that is, water, in addition to the ice chips she has been taking. She had a craving for a Sprite, which she generally hates, so it must be an indication of getting better.

Dr P. decided to keep on waiting before venturing into surgery, this time on account of the pneumonia. Since her bowel is still full of barium (contrast liquid), they still cannot do a CT scan, which she would really like to plan for surgery: once inside she wants to debulk, take out as much tumor as possible, "while we're at it". So as long as she remains stable and regaining strength, clearing the lungs of pneumonia and slowly clearing the bowel from the gunk, she's on a good path. Surgery tentative for Tuesday morning. More hurry up and wait.

I guess we must be waiting for Camila, who is coming home for a week, arriving tomorrow night. It will be a beautiful gift for all to be with her here during this time.

Thanks to all for the messages, emails, SMS, prayers, poojas, candles, offerings, energies and other expressions of care, love and support. It seems my morning owl was just echoing voices from many around the world, in many languages, to many gods, all rooting for Claudia's prompt recovery. Thank you all.

Thursday, November 01, 2007

Hurry up and wait

This morning I was running in the forest. It was still dark, with pale hints of dawn over the mountains. Suddenly I felt a "swoosh" over my head. An eagle, I thought? A few steps later I saw it: a big owl, perched upon the leafless branches, profiled against the dark sky, unmistakable. It hooted three times, saying good morning.

I needed the salute. I had spent a night of bad sleep thinking I would be called back to the hospital in a hurry, thinking Claudia would not make it through the night.

But she did, and she was a bit stronger and in less pain, half asleep and half awake, pulling herself together for the next battle.

Doctors came and went, plans changed and changed again, and early in the evening Dr P. came by, ready to perform surgery, or to wait a bit longer. She will wait a bit longer.

Tomorrow is a new day. I'll be looking for the owl, early in the morning, in the forest.

Wednesday, October 31, 2007

Long day, no surgery yet

Claudia's condition deteriorated overnight, and she was eventually transferred to intensive care unit where they could keep a closer eye on her, waiting for possible surgery at 4 pm. But the surgeon found her too weak, her white blood cells too low, making the risk of surgery larger than the possible benefits.

So she continues in observation at ICU, recovering some energy with blood transfusion, antibiotics and IV nutrition, hoping to get her in better shape to tolerate a surgery in a couple of days, unless something changes and she needs emergency surgery, in which chase there is no choice.

So I left her in stable condition to go celebrate Halloween with the boys, cell phone on, just in case.

Happy Halloween.

Tuesday, October 30, 2007

Complications and surgery?

I'm at the hospital now, Claudia sleeps, we wait.

It seems tumors have grown in a way that has been slowly blocking her intestine, and it is now getting clogged. The doctor was surprised Claudia was not having more symptoms, but then she laughed and said: "well, you're Claudia... you take pain too well."

She had been having abdominal pain for over a week, and increasing nausea, unrelated to chemo. The headaches too, of course. Now we know why.

She came to the hospital yesterday (silly girl, she drove herself!) and was admitted for further tests that involved drinking a contrast beverage and taking lots of x-ray pictures to see how it made its way along the bowel. It gets to a point where it stops, but there is also an area where it simply slows down.

So the morning news are kind of unsettling: if she has a distinct place where there is something blocking that can be removed, it has the easiest fix: go in and cut it out. If it is a whole area that is blocked by a larger mass of tumors, then surgery is not really a good option. She could then try IV nutrition and stronger chemo to try to kick it out. A CT scan would help tell the difference and help the doctor recommend a course of action, but only after her bowel empties all the contrast fluid that she took for the first test, and that won't happen quickly. So we're stuck waiting. She will stay in the hospital for a few more days until the CT scan can be done, on Thursday or Friday, and then we will see. The doctor has scheduled surgery for the weekend, just in case that is the best route, and got her started on IV nutrition, which will help anyway.

I'll be taking care of practical stuff, and seeking help through the support team in place, to keep it simple and effective. Thanks for all the offers to help. Althouh I value and appreciate them all, I may not be able to respond to each one.

Wednesday, October 24, 2007

No platelets, no chemo

This week's chemo was cancelled again, on account of low blood count, especially platelets. Even though the last dose of Topotecan had been smaller, her bone marrow is not taking the poison too well, and it is having a hard time recovering each time. With low platelets, her energy and immune system are also low, though.

So the good news is she did not have chemo. The bad news is she could not have chemo.

She is dropping the Avastin, too, after six months with it. It did not seem to be doing much, and it was giving her severe headaches now, and easy bruises and bleeding. Lots of controversy around Avastin and how it is being marketed by its maker, Genentech, to maximize their profit.

I've received from a couple of friends comments and a link to a recent lecture by a Carnegie Mellon professor who is facing imminent death by advanced pancreatic cancer, and he reflects on his life and choices, inviting us to fulfill childhood dreams. You can view it here, Oprah style, yet powerful enough.

We had one of those beautiful fall days, with foggy sunrise and sharp, bright colors all day. A welcome change from the ongoing rain. Rain does not seem to affect Tomas or Mateo's soccer practice and games. They are practicing hard, twice a week each one (on different days, of course), and playing every Saturday (at different times and places, of course). Soccer keeps them busy, focused and productive. It gives them childhood dreams, and memories.

"I can't have too much of it", says Mateo.


"I can't have too much of it", says Tomas.

Thursday, October 18, 2007

Jueves, from Claudia

Claudia wrote this in the morning. It is Thursday, coming out of chemo tunnel.

Pensando en el miércoles que por fin pasó.

Pasó otro miércoles. Sí quizá los miércoles son un día como cualquier otro, tal vez la diferencia es que está en medio de la semana pero nada más hace memorable los miércoles, sin embargo el miércoles se a convertido para mí en ese día en que los demonios me acechan, sí, el dolor aquí y allá, el malestar en el estómago, una nube en mi mente, la tristeza y todas las sensaciones de cansancio se agolpan haciendo las horas del miércoles, largas, pesadas, interminables.

El miércoles es el día en que puedo reflexionar acerca del mundo y sus maravillas, del mundo y sus horrores, del mundo y el cansancio que me produce seguir en este callejón que no tiene salida en miércoles.

El miércoles es el día después de la quimioterapia, es el día en que no soy yo, es el día en debo llamar a todos los dioses para que me asistan y me levanten con sus poderes y me permitan amanecer y sonreír y ver el sol naciente, aunque sea un mismo jueves de lluvia en Bellevue, pero para mí es un nuevo jueves sin demonios, con dolores, pero con luz en el callejón.

Feliz jueves.

Claudia.

Sunday, October 14, 2007

Mid October colors and sounds

Fall colors are in their splendor this week, reminding us that change comes, no matter what.
"This too will pass", say the leaves as they turn yellow, orange, red. "This too will pass".

We celebrated Mateo's birthday party in great musical style: since fifth graders start playing an instrument in school this year, we asked his friends to bring their instrument and play a Happy Birthday ensemble. Mateo asked me to record it for Camila, so here it is:



Claudia's headaches have continued, so she had an MRI of her brain, just in case. Nothing, fortunately. Pain medications, nausea, constipation... but she keeps a smile on her face, and keeps moving on. She wants to start doing massage again, so we are setting up her studio... she will start taking bookings soon, so let her know if you want one!

Sunday, October 07, 2007

Fall is here, timidly

Fall is here, mostly wet.
Colors are here, mostly pale.

This weekend is Thanksgiving in Canada,
one month ahead of the same date in USA.
Tomorrow is Columbus day in USA,
a few days ahead of the actual date.

Oct 12,
commemoration of the invasion and carnage of the Americas,
at the hands of the Spanish, the British, the Portuguese, the French... the civilized world.
Also the anniversary of my grandfather's death,
Ricardo Gomez Campuzano, the painter.
He died of old age, as everyone should.
Also, Oct 12 we will celebrate Mateo's birthday;
he leaves the single digits for good.
There will be no school that day.

Claudia has been having severe headaches this week,
her week off chemo.
She goes back this week. What will it bring?

The boys have been busy with school, soccer and music,
while Camila finished quarterly exams, state exams, SAT.
I've been busy staying together. Barely succeeding.

Change is in the air this month of October.
The fall colors are here, timid, but here nonetheless.

Saturday, September 29, 2007

The Web of Life

I've been thinking about the Web of Life, how everything is connected and everything can be rebuilt.

Claudia and I went walking in the woods this week and found this web, with its spider right in the middle. And then Peter Luton shared this poem in this week's Beacon:

Fragile as a Spider's Web

Hanging in space
Between tall grasses,
It is torn again and again.
A passing dog
Or simply the wind can do it.
Several times a day
I gather myself together
And spin it again.

Spiders are patient weavers.
They never give up.
And who knows
What keeps them at it?
Hunger no doubt.
And hope.

Love, by May Sarton.

Tuesday, September 25, 2007

No test, No chemo

After a confusing day at the hospital yesterday, Claudia ended up not having a test to try to figure out what is going on with her kidneys: they wanted to admit her to the hospital overnight, which nobody had told her before, so she rather came back home with no test.

Then today she went for chemo but could not get it either: her blood counts (white cells, red cells, platelets) were too low already, after only two chemo sesions the last two weeks. She had been feeling weak and nauseated, and she had been bleeding for no apparent reason over the weekend. Well, the blood is not doing too well. The good thing is she will have a bit more time to recover, since next week is her week off treatment.

I've been thinking why I'm not writing much on the blog lately (there is a lot going on at home, at work, at school), and why I rarely comment on the things happening in the world (there would be plenty!). But then, once started, when would I stop? Silly things like the paper this morning saying that annual checkups are a waste of money (Claudia's diagnosis started with a regular annual checkup almost two years ago), or more profound things like the need to reinvent the way education is shaping the future generations, from pre-K to graduate school (our kids are at the borders of middle school, high school, college). Blogs are a new, powerful and decentralized communication channel that combine the intimate and the public in a way never seen before. I guess this one stays more on the intimate side. I'd rather have a conversation with friends about the rest.

Wednesday, September 19, 2007

Getting back to Chemo Normal

Third week of September and we are getting back into the strange "normal" of chemo schedule:

Claudia gets her weekly dose of chemo and spends the next few days not eating much, feeling weak and nauseated. Last night she was throwing up vigorously while I helped Tomas with his math homework.

The boys are busy with their school and after-school activities. Soccer dominates, with one or the other having practice mon-thu and both having games on Saturday. There are also music lessons (Tomas continues with the trumpet and Mateo is super excited to start with the clarinet), and they wanted to continue with chess club and swim team... not enough hours in the day to live it all.

Days are getting shorter and cooler, sure signs of fall, the season of colors that is coming to us. Not enough months in the year to live it all.

Tuesday, September 11, 2007

Anniversary for a new Beginning

Today is Sept 11. Most people in the USA now remember this as the day of the attack on the Twin Towers, but we remember it as the day Claudia and I met, 14 years ago today.

It is also the day Claudia started chemotherapy again, after taking a break for the most enjoyable summer we've had in ages.

After a small surgery yesterday to replace both stents to the kidneys (one of them was malfunctioning, and the other was getting close), today she made her way to the chemo room at Overlake hospital to get a new dose of Topotekan and Avastin, with the usual add-ons of anti-nausea and anti-allergic. At lunchtime she was home, and we ate together to celebrate our anniversary. Well, I ate while she watched, only half there, and then fell asleep in the hammock.

Here we go again, on the week after back to school. Fourth inning, and chemo infusion no. 73, more or less. I lost count.

Saturday, September 01, 2007

Back to school, back to chemo

The first weekend in September is a long weekend in North America, and it marks the end of summer and the beginning of the school year. We spend it doing one last summer project: a tree house.

Next week Tomas starts middle school, and Mateo starts his last year of elementary school; Camila had an early start so she is already a few days into her last year of high school. I go back to work after my short-term leave, and Claudia goes back to chemo.

Back to chemo after the summer off, and with some test results to look at. The PET scan shows no new tumors have developed during the summer, and although some of the existing ones in the abdominal cavity are a bit bigger, other active lymph nodes higher in her chest and neck are smaller or unchanged. Tumor markers are high, we knew already, but they are only numbers... she will try to get them down with more chemo (Topotekan), still combined with Avastin. Once a week, three weeks on and one week off, shake well and repeat. This will be our schedule for the fall.

Plus soccer, of course. And music. And throw in some swimming and chess club, but leave time to play in the tree house. We've had tree houses or forts in every house we've lived in for the past ten years (this is the fourth one), but it took us a bit longer to build this one in Bellevue. In exchange, it is bigger, taller, and nicer looking than any of the the past ones, and it will also feature a shelf, a table and a fireman pole. It also has wi-fi, of course, and it is Ipod-ready. The boys used cookies and milk to make a toast "to the new tree house" yesterday, the first snack at their new headquarters, as they are calling it. A tree house is a good place to watch life go by.

Saturday, August 25, 2007

One final bit before returning to chemo

It is the end of summer. Only a few days left, and then school starts again. With it, Claudia will start chemo again too. We are taking advantage of every minute of this special summer without chemo.

Tomas is in a soccer tournament this weekend. Watch him here stopping a penalty kick, photo by Xiaoning! Despite stopping this one, the team lost badly. So after the last game we're going camping. Friends point us in the direction of Winthrop, WA, and a State Park over there.

Next week September is here, and life will be once structured around chemo schedules and side effects.

Sunday, August 19, 2007

End of Summer

Today it rained. We just needed to water the vegetable garden to make it rain. The tomatoes are not ripening and the lettuce is way past its prime. The plums are now sweet and tart, good to start making plum jams. We picked the first bucket.

It rained today. The sky was crying with us because Camila left today. She heads back to school, to finish her last year, and then who knows which college she will go to, or in what field. She is handling her crutches well after surgery, but our hearts melted at seeing her carted away in a wheelchair at the airport security checkpoint. She still waved and smiled.

Today it rained and we still made a fire to warm our souls as the summer slips by. Claudia's tumor marker results are back, and we tell ourselves they are only numbers. CA 125 at 2,200, three times what it was at the beginning of the summer, when she stopped chemo. We give thanks for the summer we've had, with all its gifts, and we prepare for what comes next.

Today it rained and we painted the door bright green, with the frame a sharp yellow. We are bright and shiny inside, even though it started to rain today, and the end of the summer is near.

Sunday, August 12, 2007

Camila is home

Surgery went well, according to the doctor, but the trouble was likely bigger than he thought: the incision is bigger, and the pain is way higher. There was a lot of pain the first day, and still a lot on the second day, so Camila had to stay an extra day at the hospital while they finally found a way to control the pain and get her started on the way to recovery. We made it home Saturday, to find a delicious lasagna brought by kind friends. Thank you again.

Recovery will be slow, it seems: she is now using Claudia's walker, and wheelchair, and tall toilet commode. Tomorrow she will be able to shower, so she will use Claudia's shower bench. She is using the reacher to pick up things, and the foot holder to lift her leg into position, and the sock putter, an ingenious contraption to help her put her socks on without help. What a strange scene, to have Camila using all these post-surgery items, and care for her as she slowly makes her way from the couch to the bed. Fortunately we had them all, and fortunately again, she can use our bedroom on the ground floor, no stairs to navigate once she is up the two steps into the house.

It is a different kind of pain, to see the wife and to see the daughter, as they go through this. Difficult to describe how, but different. She is young and strong, and she is not in chemo at the same time, so her recovery should pick up quickly.

I guess this is the anticlimax that follows the trip to Guatemala. We are again here, now. In the peace of the moving wave.

Tuesday, August 07, 2007

Medical Week

Our first week back will be full of medical events:
  • Monday: we arrive back from Guatemala.
  • Tuesday: Claudia goes for Avastin and to check CA 125 tumor markers.
  • Wednesday: Camila gets ready for surgery; Mateo starts soccer practice.
  • Thursday: Camila has surgery for her bone cyst.
  • Friday: Camila comes back home from surgery.
Not a minute to get bored.

Monday, August 06, 2007

End of vacation

We had mapped out up to here, to the end of Lake Atitlan, and the rest was open, waiting to see what would unfold. Through a series of impossible coincidences we ended up meeting Dr Bill, who worked on Claudia with a mixture of bio-energetic and traditional healing, and by the next morning she was already feeling a lot better! Strange things that modern medicine does not understand.

After this, the last few days in Guate allowed us to see the zoo, the archaeological museum, and a small site of Mayan ruins in a stunning setting, Mixco Viejo. There was also a lot of swimming, playing tennis, ping-pong and pool, and good food to go with even better conversation. What a treat to visit with good friends!

We will find out the meaning of Dr Bill's work soon enough, and we return home with rested bodies and happy souls.

For a bigger collection of photos from the trip, check out this online album.

Wednesday, August 01, 2007

Lake Atitlan

Three days on beautiful Lake Atitlan can help restore anyone's body and soul. It is surrounded by volcanoes, one of which we actually saw spouting some lava one evening, and by a dozen villages that can be reached only by boat, one of which we visited. The rest of the time we were hanging out on the porch of the small hotel Lomas de Tzununá, to take in the view, or on the deck, 500 steps below, to swim in the lake.

Strange coincidences, we got to see Guillermo, long lost for 14 years, who not only was in the country these days but also wanted to see his friends, owners of the hotel. We had one full night and a bottle of rhum to catch up on stories of over a decade gone by.

Check out the base supporting the ferris wheel in the small town across the lake: solid enough to talk us all, including the kids, out of taking a ride on it. The town saw its share of deaths in the massacres of the 80s, and the amusement park owner is said to be in jail every month or so for a few days, because there is always someone killed in an accident, so we decided to pass. Enough deaths, on all counts.

Sunday, July 29, 2007

Chichicastenango

The market at Chichi has brought together for centuries Mayan villagers to buy and sell their produce and crafts, and to honor their gods. The Spanish came in the 1500s and added a Catholic church on top of the temple, and an array of saints and rituals that blended with the local practices. More recently tourists were added, first adventurers with backpacks and then busloads with cameras and easy dollars. The result is an eclectic mix that combines them all, with an added spice of political campaign for elections next month.

People start gathering on Saturday, in anticipation for the Sunday frenzy of colors, smells and textures. We can tell avocados are in season, it seems every other cartload is filled with them. There is a wealth of textiles, uniquely beautiful in Guatemala, as well as wooden masks and figures, combining Mayan and Spanish themes. There are cell phone accessories, and CDs and DVDs with all recent releases of movies and music. There are stalls with "top quality american clothes" that sell hand-me-downs of used clothing that did not make it to Good Will stores. There are tortilla makers every few steps, clapping their corn patties and roasting them on tin flats, and prepared foods that our bodies won't tolerate any more, so we don't even try them.

And above it all, there is the church. The steps are filled with flowers for sale, and the offerings of incense, candles and flowers are not around the altars and saints, where churches usually have them, but on the floor, where Mayan gods are worshipped, where they have been worshipped for centuries, even before the church was placed there.

Chichi is both past and present, Catholic and Mayan, thrilling and exhausting. One of the unique wonders of this amazing country.

Friday, July 27, 2007

Antigua

Antigua is one of the most beautiful cities on the continent. It used to be the nation's capital, but it was destroyed in one earthquake after another, until it was finally abandoned in 1776 (the same year of the US independence). Its colonial atmosphere and architecture survive the years, soaking sun by the volcanoes and indulging us with its beauty.

We see a beautifully strange exhibition that combines both ancient and modern sculpture, beautifully displayed at the Santo Domingo cloister. Also, a photo exhibition of three generations: a family of photographers, and a family circus, three generations of lens and trapeeze. Loving the circus and loving photography made this quite unique.

Karin and Julio offer us an additional gift: they take the kids back to their place and leave us alone, Claudia and I, for a night in beautiful Antigua. We had dreamed about visiting Antigua together for years, and here we are at last, alone. Gracias!

Wednesday, July 25, 2007

Ciudad de Guatemala

With a lovely welcome from Karin & Julio we visit Guate, the new capital. First stop is the fruit market, where we take in the smells, sounds and tastes of tropical fruits and people's market. Fruits are truly tasteless in the North during most of the year, and markets are never quite as interesting!


We visit the Popol Vuh museum, which holds a beautiful, small collection of Mayan artifacts from pre-classic (1800 BC to 250 AC), classic (250 - 900), and post-classic (900 - 1450) periods. Quite amazing to see the actual pieces, from a time when most of the rest of the world was far less advanced: here they had writing, complex math and astronomy. Detailed codex written on parchment survived but are kept in museums abroad. The Popol Vuh museum holds a reproduction of the Dresden Codex; what an irony, to name it after the place where the original is kept today.

The main square downtown has the former government buildings and the cathedral, plus pigeons to feed and chase, like most downtown squares in Latin America. Mateo had flashes of memories chasing after pigeons in other squares, so he added Guate to his collection.

Sunday, July 22, 2007

SummeRun 2007


With an amazing turnout despite the rain and the early hour, we had a great SummeRun 2007 this morning. About 80 people made up the team "Around Claudia". Some running, most walking, all having lots of fun. This picture is one I could take when I tried to get the team to walk together, but failed. There will be more pictures from the event photographers available online.

It was great to see friends from cancer retreats, from soccer teams, from swim team, from track and field team, from church, from school, from work, long time friends and recently discovered friends. Thank you all for coming around Claudia and expressing your support.

We raised $5,345 through the SummeRun web site (including employer matches), and over $1,000 more in registration fees, all of which go to support the Marsha Rivkin Center for ovarian cancer research. Thank you all for the generosity!

I thought of a few awards worth mentioning, at risk of seeming unfair for not mentioning everyone:
  • longest distance travelled: Melissa came all the way from Germany.
  • longest run: Calibosos ran 10K... we barely saw them!
  • shortest walk: Emma and Camila did the last 50m walking (they were in a wheelchair the rest of the way).
  • biggest birtdhay: Jan, with 2000 people celebrating with you.
  • earliest friends: Olga is Claudia's friend from college, she came here from St Louis for the walk. Marta is my friend from when we were teenagers.
  • earliest wake-up call: Herb and Rona got up at 3 am to make it in time, all the way from Bremerton.
  • earliest to get there: coach Traci and her family; I don't know at what time they got there, I think they slept on site.
  • most excited: Samson, our dog, who was too excited to make sense of anything.
  • happiest: Claudia, to see this day and this team come true.




Thank you all.
thank
you.
thank you.

Friday, July 20, 2007

Potter mania

Tonight is the much awaited release of the last book of the Harry Potter series, and we're off to one of the celebrations at the local book store that will start selling it at midnight. The last few days have seen intense Potter movies and readings at home, and speculation about what will happen in the next one. Amazing how this has helped infuse a passion for reading! I guess the trip to Guatemala will be memorable for the marathon to finish it first, as well as for the visits to lake Atitlan and the market at Chichicastenango.

We're all set for the SummeRun "Around Claudia" this Sunday. We have over 40 people registered to walk / run with us in the "Around Claudia" team, and we've raised over $5,000 in donations for ovarian cancer research. Thank you all for the generosity, and extra thanks to all those who will be walking with us Sunday. It should be a big party!

With soccer practices sprinkled over the weekend, and preparations for travel Sunday night, I'm not sure how quickly I'll be able to put something about the run, or how much of travel adventures I will be posting during our two weeks in Guatemala. At the very least, I promise a collection of photos to share upon our return. We need the break!

Tuesday, July 17, 2007

Bone Cyst and family travel

After a lot of uncertainty we learned today that what Camila has in her leg is most likely an aneurysmal bone cyst... a type of bone tumor that is a bit more aggressive than the unicameral one but not as bad as a bone cancer or osteosarcoma, which is what the doctor was suspecting yesterday and did not want to say anything. We spent 24 hours of suspense, turning purple of not breathing, pinching ourselves and asking: why this? why now? why her?

In the end, it turned out for the better: she has a new knee brace, we can go to Guatemala as planned, and she will have surgery when we return. She will likely be at the hospital overnight, even though the surgery only takes about an hour and a half.

So, it seems this year Camila will be the one using the wheelchair for Swedish SummeRun this Sunday. We have a great (and still growing) team walking and running. We hope to see you all there this Sunday! You can still register here to be part of our team (but you will have to pick up your t-shirt on site, as I already have the stuff for those who were registered by last weekend).

Friday, July 13, 2007

Friday 13


All seemed to be going well on this Friday 13th. It was "take your kids to work" day, so we had planned lunch at the cafeteria and visits to friends' offices in the afternoon. Camila woke up with pain on a knee, so Claudia took her to the doctor instead. It turns out that while the boys had chicken burgers Camila had X-rays done, which revealed something we had never heard about: a uni-cameral bone cyst in her left femur, and a smaller one in the right one.

She is now wearing a long knee brace and crutches, waiting for a specialist from Children's hospital to see her next week to suggest a course of treatment ranging from observation to injections or surgery.

We thought the trip to Guatemala might be compromised by Claudia's health, but you never know where the next curve ball will come from. At least we now know it is most likely a very benign tumor that would have gone unnoticed and likely healed itself over time if there had not been a small fracture or lesion last night that is what is causing pain.

We will see what comes next.

Tuesday, July 10, 2007

10 Reasons to celebrate and give thanks

  1. Claudia's birthday celebration was a beautiful opportunity to see friends and make prayer flags that wave in the wind.
    Thank you for your friendship.
  2. We sent a donation of $500 (plus employer matches) to Harmony Hill, in honor of Claudia's birthday.
    Thank you for your generosity.
  3. We received many cards, calls and messages for her birthday, including songs on the answering machine.
    Thank you for your love.
  4. The team "Around Claudia" has 23 people registered, plus several more who are not registered, to walk 5K with us next July 22.
    Thank you for your support.
  5. We reached our goal of $4,000 raised for ovarian cancer research, in preparation for Swedish SummeRun 2007.
    Thank you for your generosity.
  6. We continue to receive all sorts of support from a beloved community: meals, rides to the hospital, help preparing the birthday party...
    Thank you for your kindness.
  7. The kids all finished their school years with flying success: Mateo gets ready for last year of elementary, Tomas for first year of middle school, and Camila for last year of High School.
    Thank you for your dedication.
  8. I will be taking a short-term leave from work to dedicate more time to family this summer.
    Thank you for making it possible.
  9. Claudia stopped chemotherapy for the summer and will have only Avastin every three weeks, with less severe side effects than chemo.
    Thank you for the medical care she receives.
  10. We will make a family trip to Guatemala right after SummeRun, to visit friends and beautiful places and give the kids more Latin American experience.
    Thank you for your hospitality.
  11. This blog continues to be an amazing experience for me, to write from the heart and be followed by so many people.
    Thank you for your care.